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LONG TERM SERVICES AND SUPPORTS
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Long Term Services and Supports Task Force
CCD HHS 504 Comments Docket No 2023-19149
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Emergency Management, Employment, Health Care, Long Term Services and Supports, Rights, and Technology and Telecommunications Task Forces and friends write to comment on the proposed rule, Discrimination on the Basis of Disability in Health and Human Service Programs or Activities
(November 13, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD NF- ICF Staffing Comments
The undersigned members of the Long-Term Services and Supports (LTSS) Task Force of the Consortium of Constituents with Disabilities (CCD) appreciate the opportunity to comment on the proposed rule to establish nurse staffing standards for long-term care facilities.
(November 6, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter on OCR and HHS Unwinding Guidances
The undersigned co-chairs of the Health and Long-Term Services and Supports (LTSS) Task Forces of the Consortium of Constituents with Disabilities (CCD) write with regard to the equity issues implicated in the unwinding of Medicaid continuous coverage.
(July 7, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Health and LTSS Task Force Comments on the Medicaid and CHIP Managed Care Access, Finance, and Quality Proposed Rule
The undersigned members of the Consortium for Constituents with Disabilities (CCD) appreciate the opportunity to provide comments on the Centers for Medicare & Medicaid Services’ (CMS’s) proposed regulation on Medicaid managed care.
(July 3, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
LTSS and Health Task Force Comments on Medicaid Access Rule
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(June 30, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter Urging Immediate Publication of Proposed Section 504 HHS Regulations.
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(April 26, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD and DAC letter opposing cuts to Medicaid
The undersigned member organizations of the Consortium for Constituents with Disabilities (CCD), and the Disability and Aging Collaborative (DAC), and other state and national organizations write to urge you to exclude Medicaid cuts or changes that limit funding or eligibility from any debt ceiling and budget negotiations and legislation.
(April 20, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS HELP Workforce RFI
On behalf of the Consortium for Constituents with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force, the undersigned co-chairs thank you for the opportunity to respond to your recent request to stakeholders on healthcare workforce shortages.
(March 20, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Senate Aging Committee Testimony
The undersigned co-chairs of the Consortium for Constituents with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force thank you for the opportunity to provide testimony in support of this Committee’s efforts to highlight the importance of the Medicaid Home and Community Based Services (HCBS) program.
(March 9, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Health and LTSS Task Force letter to CMS on Medicaid Unwinding.
We, the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health and Long-Term Services and Supports Task Forces write regarding the unwinding of the Medicaid continuous coverage requirement. The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 2, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD 2022 LTSS Task Force Annual Report
(January 16, 2023) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Comments Submitted for Medicaid Eligibility and Enrollment Streamlining Proposed Rule
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(November 7, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD 1557 Comments
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Care, Long Term Services and Supports, and Rights Task Forces write to comment on the notice of proposed rulemaking referenced above. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(October 3, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Task Force Support for DSP SOC Sign-on Letter
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force write in support of the Recognizing the Role of Direct Support Professionals Act (S. 1437), which would require the Office of Management and Budget (OMB) to revise the Standard Occupational Classification (SOC) system to create a distinct classification for direct support professionals (DSPs).
(September 16, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter Regarding Youth in Foster Care in Institutional Settings
Dear Senators Wyden, Crapo, Murray, and Burr, and Representatives Pallone, McMorris Rodgers, Neal, and Brady: The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(May 9, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Request for Information: Access to Coverage and Care in Medicaid & CHIP
Objective 1: Medicaid and CHIP reaches people who are eligible and who can benefit from such coverage. CMS is interested in identifying strategies to ensure that individuals eligible for Medicaid and CHIP are aware of coverage options and how to apply for and retain coverage. Eligible individuals should be able to apply, enroll in, and receive benefits in a timely and streamlined manner that promotes equitable coverage.
(April 18, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter of Support for the Stop Unfair Medicaid Recovery Act, H.R. 6698
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(March 7, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter Requesting Extension of Deadline to Expend HCBS ARPA Funds
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance. CCD’s Long Term Services and Supports (LTSS) Task Force has been tracking with great interest the implementation of Section 9817 of the American Rescue Plan Act (ARPA).
(February 25, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Long Term Services and Supports Task Force 2021 Annual Report
(January 10, 2022) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Comments on Securing Updated and Necessary Statutory Evaluations Timely, Proposal to Withdraw or Repeal
On behalf of the Consortium for Citizens with Disabilities’ (CCD) Long Term Services and Supports and Health Task Forces, we write in support of the Department of Health and Human Services’ (HHS) proposal (hereinafter “Repeal Rule”) to withdraw or repeal the Securing Updated and Necessary Statutory Evaluations Timely (SUNSET) final rule.
(December 28, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Health and LTSS Task Forces comments to the HHS Strategic Plan
The Consortium for Citizens with Disabilities (CCD) Health and Long Term Services and Supports Task Forces write in response to your request for public comment on the Draft HHS Strategic Plan for FY 2022-2026. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(November 5, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
LTSS Cochair Letter Regarding the Build Back Better Act
Dear Leader Schumer, Speaker Pelosi, Senator Wyden, and Representative Pallone: The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(September 16, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter in opposition to proposals to increase federal medical assistance percentage (FMAP) for ICF/ID services
Dear Leaders Schumer and McConnell, Speaker Pelosi, Leader McCarthy, Senator Durbin, and Representative Schiff: The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned CCD Long-Term Services & Supports (LTSS) Taskforce members write to share our opposition to a proposal to increase federal medical assistance percentage (FMAP) for ICF/ID services.
(September 8, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Response to Request for Information on Design Considerations for Legislation to Develop a Public Health Insurance Option
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write in response to your request for information on design considerations for legislation to develop a public health insurance option. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 30, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Better Care Better Jobs Act comments
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 21, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Co-Chair Letter to Hill on HCBS $400 billion
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 15, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Co-Chair Letter to White House on HCBS $400 Billion
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 15, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD DAC Letter on HCBS 400 billion
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Disability and Aging Collaborative (DAC) is a coalition of approximately 40 national organizations that work together to advance long-term services and support policy at the federal level.
(May 27, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD SOC Letter of support Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force support Recognizing the Role of Direct Support Professionals Act. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The LTSS Task Force focuses on ensuring that people with disabilities and aging adults have access to the LTSS, particularly Home and Community Based Services (HCBS), they need to live, work and participate in their communities.
(April 28, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD comments re: HCBS Access Act
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Long Term Services and Supports (LTSS) Task Force addresses the services and supports that enable individuals with disabilities of all ages to live in their homes and communities.
(April 26, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Comments to CMS on Implementation of the American Rescue Plan's Home and Community-Based Services Provision
Dear Acting Administrator Richter, The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 29, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Thank you Letter to Leaders Schumer and McConnell and Speaker Pelosi and Leader McCarthy
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Disability and Aging Collaborative (DAC) is a coalition of approximately 40 national organizations that work together to advance long-term services and support policy at the federal level. Formed in 2009, the DAC was one of the first coordinated efforts to bring together disability and aging organizations.
(March 18, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD MW Sign On Letter
The undersigned members of the CCD Long Term Services and Supports (LTSS) Task Force strongly urge you to ensure that any proposal to increase the minimum wage includes commensurate Medicaid funding for rate increases to cover those additional labor costs. In addition, we ask that you form a commission that includes people with disabilities and direct care workers to make certain that home and community-based services (HCBS) for people with disabilities and aging adults remain steadfast, and so that a workforce already in crisis does not face greater challenges.
(February 25, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD DAC COVID HCBS Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Disability and Aging Collaborative (DAC) is a coalition of approximately 40 national organizations that work together to advance long-term services and support policy at the federal level.
(February 2, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
AAPD-CCD letter to Secretary-Designate Becerra with disability health care priorities following up on disability groups' meeting
Thank you for meeting with our organizations to discuss the disability community’s priorities for the Biden Administration. Our nation is currently home to more than 61 million people with disabilities, and this number grows every day. The disability community is incredibly diverse in both identity and experience. Disability is most prevalent in women and in Black, Indigenous, and people of color.
(January 28, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter of Support for MACPAC Nominees
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(January 26, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Annual Report - Long Term Services and Supports Task Force
(January 8, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Joint LTSS and Health Task Force Comments on CMS' COVID-19 Interim Final Rule.
The Consortium for Citizens with Disabilities (CCD) Health and Long Term Services and Supports Task Forces appreciate the opportunity to submit comments on the Centers for Medicare and Medicaid Services (CMS) Interim Final Rule “Additional Policy and Regulatory Revisions in Response to the COVID-19 Public Health Emergency."
(January 4, 2021) - Download [ PDF ] |
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Long Term Services and Supports Task Force
DAC and CCD Letter on HCBS
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Disability and Aging Collaborative (DAC) is a coalition of approximately 40 national organizations that work together to advance long-term services and support policy at the federal level.
(December 7, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Comments on HHS' proposed 'Securing Updated and Necessary Statutory Evaluations Timely' Regulation.
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(December 4, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter from the CCD LTSS, Health, and Rights Task Force to the Biden-Harris Transition COVID-19 Advisory Board
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. CCD members represent a broad range of stakeholders – people with disabilities and their families, older adults, disability service providers and workers, healthcare professionals, and state systems that provide disability services – who advocate on behalf of adults and children with all types of disabilities, including people with physical, intellectual, developmental, and mental health disabilities, chronic health conditions, and older adults.
(November 20, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS TF: Comments on CMS Interim Final Rule on COVID19 testing
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The
(November 2, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Vaccine Allocation Principles October 2020
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The COVID-19 pandemic has required our health systems to prepare for and consider the implications of allocation of scarce medical resources in a number of contexts, and the same remains true regarding allocation of a potential coronavirus vaccine.
(October 23, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Comments to CDC Advisory Committee on Immunization Practices
Thank you for the opportunity to provide public comment for the October 2020 meeting of the Advisory Committee on Immunization Practices (ACIP) at the Centers for Disease Control and Prevention (CDC). The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(October 23, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Joint CCD LTSS Task Force and Disability and Aging Collaborative Letter to CMS regarding Appendix Ks and retainer payments
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD), Disability and Aging Collaborative (DAC), and other state organizations write to raise some concerns about flexibilities that have been vital to state systems in the face of the COVID-19 pandemic, and to encourage you to make allowances for them to continue.
(October 23, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Comments from LTSS and CCD co-chairs on HHS Good guidance proposed reg.
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations advocating together for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health and Long Term Services and Supports Task Forces, thank you for the opportunity to comment on the proposed rule.
(September 16, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD OCR Vaccine Allocation Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health, Long Term Services and Supports, and Rights Task Forces, write to provide input regarding allocation of a potential coronavirus vaccine.
(September 9, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Vaccine Allocation Comments
Thank you for the opportunity to comment on the Discussion Draft of the Preliminary Framework for Equitable Allocation of COVID-19 Vaccine. The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health, Long Term Services and Supports, and Rights Task Forces, appreciate the opportunity to comment on this important framework.
(September 4, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Rights, LTSS and Health TF Letter re Senate COVID Package
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights, Health, and Long-Term Services and Supports Task Forces write to express our strong opposition to the SAFE TO WORK Act and deep concern about critically important measures that are not included in other portions of the Senate’s COVID-19 relief package. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 30, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS TF Response to HEALS Act
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The co-chairs of the CCD Long-Term Services and Supports (LTSS) taskforce write in response to the HEALS Act that was introduced in the Senate yesterday.
(July 29, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS TF Comments for Commission on Safety and Quality in Nursing Homes
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 17, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Health and LTSS Task Forces Letter of Support for Coronavirus Medicaid Support Act
On behalf of the Consortium for Citizens with Disabilities (CCD) task forces on Health and Long-Term Services and Supports, we write to express our support for the Coronavirus Medicaid Response Act (S. 4108)
(July 13, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Comments on CMS Interim Final Rule re Nursing Home COVID-19 Reporting Requirements
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-Term Services and Supports Task Force write to implore HHS to include all institutional facilities that receive Medicaid funding, not just nursing homes, in its interim final rule on nursing home COVID-19 reporting requirements.
(July 7, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Statement for House Ways and Means Nursing Home Hearing
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long Term Services and Supports Task Force write in response to today’s hearing, “Examining the COVID- 19 Nursing Home Crisis.”
(June 25, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
National and State Sign on COVID 19 Senate Letter
The 252 undersigned member organizations of the Consortium for Citizens with Disabilities (CCD), Disability and Aging Collaborative (DAC), and other state and national organizations write to urge you to include the vital needs of people with disabilities and aging adults in the next COVID-19 relief package.
(June 15, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS TF Letter to Senate on Pakage Four
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 29, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
LTSS Task Force comments to the Senate Aging Committee hearing “Caring for Seniors Amid the COVID-19 Crisis”
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long Term Services and Supports Task Force write in response to today’s hearing, “Caring for Seniors Amid the COVID-19 Crisis.”
(May 20, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
LTSS Task Force comments on proposed PASRR regulations
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. CCD’s Long Term Services and Supports Task Force advocates for federal policies to expand access to Home and Community-Based Services (HCBS), recognizing that these services are critical to ensuring the civil rights of people with disabilities and older adults to live, be included and fully participate in their communities.
(May 19, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter to CMS and ACL re nursing home initiatives
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-term Services and Supports taskforce write in response to the Administration’s recent announcement of the creation of an independent commission to address safety and quality in nursing homes.
(May 5, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter to CMS and CDC re the nursing home COVID-19 transparency effort
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-term Services and Supports taskforce write in response to the Administration’s “New Nursing Homes COVID-19 Transparency Effort” announcement earlier this week.
(April 21, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Co-Chair HCBS Grant Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-term Services and Supports taskforce write in response to the growing outbreak of COVID-19 across the United States, and the growing need for home and community-based services (HCBS) of people with disabilities in the face of the pandemic.
(April 13, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD letter to Secretary Alex Azar
The undersigned members of the Consortium for Citizens with Disabilities (CCD) strongly condemn the Centers for Medicare & Medicaid Services’ (CMS’s) new policy inviting states to apply for block grants and per capita caps, as announced in its January 30, 2019 Dear State Medicaid Director Letter.
(March 20, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD SOC letter of support House
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force support Recognizing the Role of Direct Support Professionals Act (HR 6045). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 6, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD SOC letter of support Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force support Recognizing the Role of Direct Support Professionals Act (S. 3369). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 6, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS letter of support for S. 3220
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force strongly support the Ensuring Access to Direct Support Professionals (S. 3220). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(January 29, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS letter of support for SENIOR Care Act (S 3010) - U.S. Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force write to express our support for the SENIOR CARE Act (S 3010). We thank you for introducing this legislation, which would remove the upper age limit, currently age 64, for people with disabilities who wish to buy-into Medicaid. This legislation recognizes the dignity of work for all Americans, including people with disabilities, as well as the importance for people with disabilities to be independent and participate in society on their own terms.
(January 17, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS letter of support for SENIOR Care Act - U.S. House
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force write to express our support for the SENIOR CARE Act (HR 5429). We thank you for introducing this legislation, which would remove the upper age limit, currently age 64, for people with disabilities who wish to buy-into Medicaid.
(January 17, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Letter of support for HR 5443
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force strongly support the Isaiah Baker and Margie Austin-Harris Act of 2019 (Isaiah and Margie’s Act/H.R. 5443). The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(January 10, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Annual Report - Long Term Services and Supports Task Force
(January 9, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
2019 Annual Report of the Long Term Services and Supports Task Force
The LTSS Task Force began 2019 by creating a large and overarching wish list of legislative priorities related to LTSS. The co-chairs have used this list in our advocacy with Congress all year. A top priority for the Task Force has been reauthorization of the Money Follows the Person (MFP) program. Although we have been advocating for a multi-year extension since MFP expired in December 2017, Congress has repeatedly passed short-term extensions, with the most recent extension through late May 2020. A bipartisan drug pricing bill introduced by Senate Finance Committee co-chairs Senators Grassley and Wyden in mid-December included permanent funding of MFP, and that will be the focus of our MFP advocacy in 2020.
(January 6, 2020) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Task Force Letter to All Presidential Campaigns
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Long Term Supports and Services (LTSS) Task Force are writing to offer you the enclosed Disability Principles for Inclusion of Long Term Service and Supports (LTSS) in Universal Health Care. These principles were developed by the disability community and should inform any policy proposals aimed at expanding access to health care.
(December 20, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD-DAC letter to Congress regarding permanent MFP and Spousal Impoverishment Protections
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD), Disability and Aging Collaborative (DAC), and other state and national organizations write to urge you to pass the permanent extension of the Money Follows the Person Program (MFP) and Spousal Impoverishment Protections included in the bi-partisan Prescription Drug Pricing Reduction and Health and Human Services Improvement Act.
(December 15, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Permanent MFP Thank You
The Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force co-chairs are writing to thank you for your inclusion of a permanent reauthorization of the Money Follows the Person (MFP) Program and Spousal Impoverishment Protections in the Prescription Drug Pricing Reduction and Health and Human Services Improvement Act.
(December 10, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD DAC Letter on LongTerm MFP and Spousal
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD), the Disability and Aging Collaborative (DAC), and other state and national organizations write to urge you to pass a long-term extension of the Money Follows the Person Program (MFP).
(October 10, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD strongly support the principles that inform the Domestic Workers Bill of Rights Act of 2019.
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long Term Services and Supports (LTSS) Task Force strongly support the principles that inform the Domestic Workers Bill of Rights Act of 2019. Domestic workers are an essential and valued part of the lives of people with disabilities. We applaud Senator Harris, Congresswoman Jayapal, and the National Domestic Workers Alliance for their efforts to secure the rights of this crucial workforce.
(October 3, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Comment Letter on Medicaid Access Rule
The Consortium for Citizens with Disabilities (CCD) Health and Long Term Supports and Services Task Forces appreciates the opportunity to provide comments on the proposed rule regarding assuring access to covered services in the Medicaid program.
(September 13, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
[House] CCD Emergency Mgmt and LTSS TF Support Letter for DRMA
The undersigned members of the Consortium for Citizens with Disabilities Emergency Management Task Force and Long Term Services and Supports Task Force are pleased to support the Disaster Relief Medicaid Act (DRMA). CCD is a coalition of national disability rights, advocacy, consumer, provider and self-advocate organizations representing this nation’s more than 61 million Americans with disabilities.
(May 31, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
[Senate] CCD Emergency Mgmt and LTSS TF Support Letter for DRMA
The undersigned members of the Consortium for Citizens with Disabilities Emergency Management Task Force and Long Term Services and Supports Task Force are pleased to support the Disaster Relief Medicaid Act (DRMA). CCD is a coalition of national disability rights, advocacy, consumer, provider and self-advocate organizations representing this nation’s more than 61 million Americans with disabilities.
(May 31, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Disability Principles for LTSS in Universal Health Care
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. This document lays out principles regarding long term services and supports (LTSS) that the undersigned members of CCD believe must be incorporated into any universal or “For All” health care system in the United States.
(March 31, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Comment to National Quality Forum
We are writing on behalf of the Long Term Services and Supports (LTSS) Task Force of the Consortium of Citizens with Disabilities (CCD). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The LTSS Task Force focuses on ensuring that people with disabilities and aging adults have access to the LTSS, particularly Home and Community Based Services (HCBS), they need to live, work and participate in their communities.
(March 27, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD MFP House Letter of support
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force write to express our strong support for the EMPOWER Care Act (H.R. 1342) to reauthorize the Money Follows the Person (MFP) Medicaid demonstration program for five more years. Reauthorizing MFP for a significant period of time is the top priority of the disability and aging communities.
(March 18, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD MFP Senate Letter of support
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force write to express our strong support for S. 548 to reauthorize the Money Follows the Person (MFP) Medicaid demonstration program for five more years. Reauthorizing MFP for a significant period of time is the top priority of the disability and aging communities.
(March 18, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
2018 LTSS TF Annual Report
(January 11, 2019) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD and the Leadership Council on Aging (LCAO) Joint letter to the Senate supporting the IMPROVE Act
We, the undersigned members of the Leadership Council of Aging Organizations (LCAO) and the Consortium for Citizens with Disabilities (CCD), are writing to urge you to pass legislation to continue two key Medicaid policies before the end of this year:
(December 12, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD MFP letter to the House
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force urge you to pass H.R. 7217 to reauthorize the Medicaid Money Follows the Person Demonstration Project (MFP) before the end of the 115th Congress.
(December 10, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter to Senate to reauthorize the Medicaid Money Follows the Person Demonstration Project (MFP)
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force implore you to reauthorize the Medicaid Money Follows the Person Demonstration Project (MFP) before the end of the 115th Congress.
(December 7, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Comments on CMS Electronic Visit Verification Compliance Survey
The Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force appreciates the opportunity to comment on the proposed collection of information entitled “Electronic Visit Verification Compliance Survey,” published on October 5, 2018. CCD is a coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of the approximately 57 million children and adults with disabilities in all aspects of society.
(December 3, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Alert on Public Charge Rule
On October 10, the Department of Homeland Security proposed the “public charge” rule. This rule would allow the U.S. to keep out people it thinks might use government benefits to meet their needs. The public charge rule will discriminate against immigrants with disabilities and their families trying to enter the U.S. (get a visa) or get a green card (become a permanent resident). It is critical that the disability community speaks out against this devastating rule before the public comment period closes on December 10th.
(October 30, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Cochairs letter to CMS requesting additional guidance on EVV implementation
The Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force is writing to express extreme concern around the lack of clear guidance and official stakeholder input around the implementation of Electronic Visit Verification (EVV) for personal care and home health services. On July 30, 2018 President Trump signed H.R. 6042 into law, establishing a one-year delay in the implementation of EVV. This delay was necessary, in part, because CMS failed to issue clear and timely guidance around EVV implementation.
(September 28, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Disability Principles for Inclusion of Long Term Service and Supports (LTSS) in Universal Health Care
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. This document lays out principles that the undersigned members of CCD believe must be incorporated into any universal or “For All” health care system in the United States.
(August 27, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter to ACL
The undersigned organizations write to express great concern about recent comments
(July 25, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Senate EVV hotline support CCD
The Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports Task Force strongly supports the efforts by Sen. Murkowski and Sen. Brown to hotline H.R. 6402, which was recently passed unanimously in the House. We sincerely thank Sen. Murkowski and Sen. Brown for their dedicated leadership on this issue with their original introduction of S. 2897 and their continued to work to ensure that an implementation delay will pass the Senate.
(July 11, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Comments on Pallone Medicare Long-Term Care Services and Supports Act Discusion
The following comments are submitted in response to the discussion draft The Medicare Long-Term Care Services and Supports Act, released on May 2, 2018. We appreciate the opportunity to submit comments and appreciate your leadership on the issue of long-term care, and acknowledgment of this extremely important topic for people with disabilities.
(June 28, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD EVV delay letter of support
The undersigned members of the Consortium for Citizens (CCD) are writing to express our support for passing a delay in the implementation of Electronic Visit Verification (EVV) under suspension. Both H.R. 6042 and H.R. 5912 include implementation delays and increased stakeholder engagement which we strongly support.
(June 19, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD letter of support for Senate EVV bill
The thirty undersigned members of the Consortium for Citizens (CCD) are writing to express our support for S. 2897 that would delay the implementation of Electronic Visit Verification (EVV) by one year and require the Center for Medicare and Medicaid Services (CMS) to engage in formal rulemaking with notice and comment.
(June 1, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD letter of support for House EVV bill
The thirty undersigned members of the Consortium for Citizens (CCD) are writing to express our support for H.R. 5912 that would delay the implementation of Electronic Visit Verification (EVV) by one year to January 1, 2020 and require the Center for Medicare and Medicaid Services (CMS) to engage in formal rulemaking with notice and comment.
(June 1, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter to CMS on Electronic Visit Verification (EVV)
The Long-Term Services and Supports, Health and Rights Task Forces of the Consortium for Citizens (CCD) are writing to express our extreme concerns with the lack of timely guidance and official stakeholder input around the implementation of Electronic Visit Verification (EVV) for personal care and home health services. A significant delay in implementation is needed to ensure that the privacy and civil rights of consumers are protected; that the administrative and financial burdens on service providers is neither onerous nor duplicative; and that states are able to design and implement their EVV programs in a thoughtful, deliberative manner.
(May 17, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD SUD IMD Letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Health, Long-Term Services and Supports, and Rights Task Forces write in opposition to proposals that expands coverage of institutional services in Medicaid without addressing gaps in Medicaid community services. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 17, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Co-chair Letter on Institutions of Mental Disease (IMD) SUD Proposal
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Health, Long-Term Services and Supports, and Rights Task Forces write in opposition to proposals that expands coverage of institutional services in Medicaid without addressing gaps in Medicaid community services. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 24, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Annual Report - Long Term Services and Supports Task Force
(January 22, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Access to Manual Complex Rehabilitation Technology Accessories Support Letter
The undersigned member organizations of the Consortium for Citizens with Disabilities write to urge passage of H.R. 3730 in order to protect access to essential components of Complex Rehabilitation manual wheelchairs known as “accessories” for people with significant disabilities.
(January 12, 2018) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal.
(September 25, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Graham-Cassidy-Heller-Johnson (GCHJ) Letter to Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal. As we have commented on multiple proposals considered by the Senate, we cannot overstate the danger facing the millions of adults and children with disabilities if the proposal’s Medicaid provisions are adopted.
(September 19, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Better Care Reconciliation Act (BCRA) Letter to the Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) strongly oppose the revised Better Care Reconciliation Act (BCRA). While we have serious concerns about many provisions of the BCRA, including a new provision that would dramatically increase costs for people with preexisting conditions, we cannot overstate the danger facing the millions of adults and children with disabilities if the bill’s Medicaid proposals are adopted by the Senate.
(July 24, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Disability Integration Act (S. 910, H.R. 2472) Support Letter
The undersigned member organizations of the Consortium for Citizens (CCD) are writing to express our support for the Disability Integration Act (S. 910, H.R. 2472). This legislation, if passed, would ensure the rights of people with disabilities to live full and independent lives in their communities.
(July 18, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Statement: CCD opposed to the Senate’s Better Care Reconciliation Act
The Consortium for Citizens with Disabilities (CCD) is strongly opposed to the Senate’s Better Care Reconciliation Act. It is simply unconscionable to restructure and decimate Medicaid, which provides healthcare services and supports that maintain the health, function, independence, and well-being of 10 million enrollees with disabilities and their families. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(June 23, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter to the Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD), write in response to the House of Representative’s passage of the American Health Care Act (AHCA). We understand that the Senate will be drafting a separate bill, which may adopt parts of AHCA.
(May 19, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Protect the ACA’s Gains for People with Disabilities
Members of the Consortium for Citizens with Disabilities strongly oppose repealing key provisions of the Affordable Care Act (ACA) without simultaneously passing a replacement plan that maintains or improves existing coverage, access, and affordability. Unfortunately, the American Health Care Act (AHCA) passed by the House would abandon or undermine key enrollee protections, and if enacted would endanger millions of people with disabilities who have gained affordable coverage and access to needed services under the ACA.
(May 19, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Medicaid Per Capita Caps and Block Grants: Devastating for People with Disabilities
Capping the Medicaid program would be devastating to people with disabilities. Medicaid provides health care services and long-term services and supports that maintain the health, function, independence, and well-being of 10 million enrollees with disabilities and, often, their families. For many people with disabilities, being able to access timely needed care is a life or death matter. Block grants or per capita caps place arbitrary limits on federal support for Medicaid, limits unrelated to beneficiaries’ actual health care needs.
(May 19, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Statement of the Consortium for Citizens with Disabilities on Passage of the American Health Care Act (AHCA).
Washington DC, May 4, 2017 - The Consortium for Citizens with Disabilities (CCD), the country’s largest coalition of national disability groups, is gravely concerned about the House of Representative’s passage of the American health Care Act. The AHCA will harm tens of millions in the United States, but especially people with disabilities who will face coverage loss, higher costs, and fewer options.
(May 4, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS & Health Taskforces respond to amended American Health Care Act legislation
The Consortium for Citizens with Disabilities (CCD) is strongly opposed to the amended American Health Care Act. The amended American Health Care Act retains the original bill’s proposals to dramatically cut Medicaid services that are vital to people with disabilities and seniors through per capita caps, which CCD has opposed.
(April 28, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Action Alert! House Considering Vote on Harmful Health Care Bill: Call Congress Now
A new amendment to the AHCA is winning the support of the House Freedom Caucus making it more likely that a vote by the House of Representatives could happen as early as this weekend. Action is needed immediately to stop the American Health Care Act (AHCA) from being approved by the House of Representatives.
(April 27, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD responds to American Health Care Act Manager’s Amendment
The Consortium for Citizens with Disabilities remains extremely concerned about the American Health Care Act. The Medicaid per capita caps in the original bill put home and community-based services (HCBS) for people with disabilities at serious risk of major cuts or even elimination, as the CBO noted. The recent manager’s amendment does not resolve these concerns, and in fact, likely exacerbates them.
(March 22, 2017) |
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Long Term Services and Supports Task Force
CCD responds to CBO score of the American Health Care Act
The Congressional Budget Office’s score confirms the Consortium for Citizens with Disabilities’ concern that the American Health Care Act would decimate the Medicaid program and endanger the lives and independence of the more than 10 million people with disabilities who rely on Medicaid. For most people with disabilities, Medicaid is the only source of long-term services and supports.
(March 16, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Medicaid Per Capita Caps and Block Grants: Devastating for People with Disabilities
Establishing funding caps for the Medicaid program would be devastating to people with disabilities. Medicaid provides health care services and long-term services and supports that maintain the health, function, independence, and well-being of 10 million enrollees living with disabilities and, often, their families.
(March 2, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Protect the ACA’s Gains for People with Disabilities
Members of the Consortium for Citizens with Disabilities strongly oppose repealing key provisions of the Affordable Care Act (ACA) without simultaneously passing a replacement plan that maintains or improves existing coverage, access, and affordability. Losing or undermining key enrollee protections or disrupting care would endanger millions of people with disabilities who have gained coverage under the ACA.
(March 2, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Task Force Annual Report 2016
(January 10, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
RFI HCBS model comments for CCD
The CCD LTSS Task Force Co-Chairs have submitted comments to the Centers for Medicare and Medicaid Services in response to the agency’s Request for Information on how to expand and improve Home and Community Based Services.
(January 9, 2017) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter Opposing Medicaid Block Grants, Caps or Cuts
The undersigned CCD organizations sent this letter to Capitol Hill, opposing block granting, setting of per capita caps or significant cuts to the Medicaid program.
(December 16, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
LTSS Task Force Comments on Application of HCBS Settings Regulation to PACE
CCD appreciates the opportunity to comment on the proposed PACE regulation. Our comments will be restricted to the application of the home and community-based services (HCBS) settings requirement. CCD strongly supports the application of the settings rule to PACE.
(October 17, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter to Senate Finance supporting reauthorization of Money Follows the Person
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force are writing to express our support for reauthorizing the Money Follows the Person (MFP) program.
(October 6, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Letter to House Energy & Commerce supporting reauthorization of Money Follows the Person
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force are writing to express our support for reauthorizing the Money Follows the Person (MFP) program.
(October 6, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Letter Urging Protection of Manual and Power Complex Rehab Technology Accessories
The undersigned member organizations urge passage of H.R. 3229/S. 2196 by year’s end to protect access to manual and power complex rehabilitation technology accessories for people with significant disabilities.
(August 18, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Statement on Recent Long-Term Services & Supports Financing Proposals
In early 2016, several bipartisan and nonpartisan organizations, including the Bipartisan Policy Center and the Long-Term Care Financing Collaborative, released reports on a path forward for future financing of our nation’s long-term care needs. The problem is clear: while our nation is aging and people are living longer with disabilities and chronic conditions, we lack a coherent plan on how to provide for their care and supports.
(May 16, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Statement of Support for the Disability Integration Act
The undersigned member organizations of the Consortium for Citizens (CCD) are writing to express our great appreciation to Senator Charles Schumer for introducing the Disability Integration Act (S. 2427), and bringing attention to the fact that states’ disability service systems continue to warehouse far too many people with disabilities in institutions.
(March 25, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Medicare letter to Senate Finance
The CCD Health and Long Term Services and Supports Task Forces provided recommendations to the Senate Finance Committee regarding policy options to improve care for people with chronic health conditions in the Medicare program
(February 1, 2016) |
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Long Term Services and Supports Task Force
CCD LTSS Task Force Annual Report 2015
(January 7, 2016) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Co-chairs letter on NQF nominations
The Consortium for Citizens with Disabilities (CCD) is a coalition of more than 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(December 23, 2014) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Complex Rehab Technology Act Support Letter
The undersigned member organizations of the Consortium for Citizens with Disabilities write in strong support of the Ensuring Access to Quality Complex Rehabilitation Technology Act (S. 948/H.R. 942).
(September 8, 2014) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS Letter to CMS on HCBS Regulation
We, the undersigned members of the Consortium for Citizens with Disabilities Long-Term Services and Supports Task Force, write regarding the implementation of the new home and community-based settings rule.
(September 8, 2014) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Commerce, Justice, Science, and Related Agencies Letter
On behalf of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports Task Force, we write to express our deep concern about language that appears in the House Appropriations Committee’s Report on the Commerce, Justice, Science, and Related Agencies Appropriations Bill and that we urge you not to include in the Senate Committee Report or the Conference Report.
(June 20, 2014) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD LTSS TF comments on National Quality Forum (NQF) Measure Applications Partnership (MAP) interim report from the dual eligibles workgroup
The co-chairs of the Consortium for Citizens with Disabilities (CCD) task force on Long-Term Services and Supports (LTSS) are writing to submit comments on the National Quality Forum (NQF) Measure Applications Partnership (MAP): 2014 Interim Report from the Dual Eligible Beneficiaries Workgroup.
(February 18, 2014) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report for 2013
(January 15, 2014) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report
(December 22, 2008) - Download [ PDF ] - Download [ WORD ] |
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Long Term Services and Supports Task Force
Joint CCD and Leadership Council of Aging Organizations (LCAO) Principles on Long-Term Services and Supports Financing Reform
(October 8, 2008) - Download [ PDF ] |
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Long Term Services and Supports Task Force
Joint CCD and Leadership Council of Aging Organization (LCAO) letter to Senate Labor-HHS-Education Appropriations Committee urging increased funding for key family support programs, including the National Family Caregiver Support Program, Lifespan Respite Care Act, and family support within the Developmental Disability Act
(June 23, 2008) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Co-Chair letter to House Labor-HHS-Education Appropriations Committee urging increased funding for key family support programs, including the National Family Caregiver Support Program, Lifespan Respite Care Act, and family support within the Developmental Disability Act
(June 6, 2008) - Download [ PDF ] |
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Long Term Services and Supports Task Force
CCD Long Term Services and Supports Task Force Report 2007
(January 11, 2008) - Download [ PDF ] |
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