Mission

The Long Term Services and Supports Task Force addresses the services and supports that enable individuals with disabilities of all ages to live in their homes and communities. In particular, the Task Force focuses on Home and Community-Based Services (HCBS), recognizing that they are the key to community integration, full participation, independent living, and economic self-sufficiency for many people with disabilities and older adults. These critical services make it possible for people with disabilities and older adults to fully exercise their civil and human rights. 

Co-chairs

• Elise Aguilar
  ANCOR

• Dan Berland
  National Association of State Directors of DD Services(NASDDDS)

• Tory Cross
  Caring Across Generations 

• Jennifer Lav
  National Health Law Program 

• Michael Lewis
  American Association of People with Disabilities

• Kim Musheno
  The Arc

• Gelila Selassie
  Justice in Aging

2024 Administrative Priorities for CCD Long Term Services and Supports Task Force
(February 8,  2024) - Download [ PDF ]

2024 Legislative Priorities for the CCD Long Term Supports and Services Task Force
(February 8,  2024) - Download [ PDF ]

ACTIVITIES

Long Term Services and Supports Task Force Letter from Aging and Disability Organizations re Medicaid Community Engagement Implementation The undersigned members of the Health and Long-Term Services and Supports Taskforces of the Consortium for Constituents with Disabilities (CCD), the Disability and Aging Collaborative (DAC), and allied organizations are writing to provide feedback on implementation of the new community engagement requirements enacted by the budget reconciliation act of 2025 (H.R. 1). Congress intended to exempt people with disabilities and their caregivers from the community engagement requirements. (October 10,  2025) - Download [ PDF ] Long Term Services and Supports Task Force DAC/CCD Letter in Support of Repealing the Health Provisions of HR1 - September 2025 The undersigned 355 organizations who are members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports Taskforces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write to urge the swift passage of the Protecting Healthcare and Lowering Costs Act of 2025 to repeal all of the health care provisions in H.R. 1 and make permanent the enhanced Advanced Premium Tax Credits for purchasing marketplace health insurance plans and similar legislation to repeal the harmful cuts to Medicaid included in H.R.1. (September 26,  2025) - Download [ PDF ] Long Term Services and Supports Task Force CCD_DAC Statement re HR 1 WASHINGTON, D.C. – July 18, 2025 – The Consortium for Constituents with Disabilities (CCD) Health and Long Term Services Task Forces and the Disability and Aging Collaborative (DAC) express profound disappointment in the final passage of HR 1, the budget reconciliation bill, signed into law on July 4. This legislation represents an unprecedented and devastating attack on the healthcare and long-term services and supports that people across America, including millions of people with disabilities and older adults, rely upon. (July 18,  2025) - Download [ PDF ] Long Term Services and Supports Task Force LTSS and Health TF - Medicaid FAQ Some answers to frequently asked questions about Medicaid, Medicaid’s funding structure, and the proposed changes included in the Senate’s proposal for budget reconciliation. (June 20,  2025) - Download [ PDF ] Long Term Services and Supports Task Force Senate Sign on Letter from 1100 Organizations on Medicaid and FY25 Reconciliation Bill The undersigned 1,100 organizations who are members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write with grave concern about the “One Big Beautiful Bill Act” because of the harmful cuts and changes to Medicaid and the Affordable Care Act (ACA). (June 5,  2025) - Download [ PDF ] Long Term Services and Supports Task Force CCD DAC Cochairs Letter on additional Medicaid Cuts in EC Reconciliation On behalf of the undersigned co-chairs of the Long Term Services and Supports and Health Task Forces of the Consortium for Constituents with Disabilities (CCD) and the Disability and Aging Collaborative (DAC), we urge you to reject cuts to the Medicaid program that would threaten the health and well-being of millions of people with disabilities and older adults. (May 12,  2025) - Download [ PDF ] Long Term Services and Supports Task Force CCD LTSS Task Force, CCD/DAC Letter to House Energy & Commerce Committee Opposing Medicaid Cats February 11, 2025 The undersigned members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write to urge you to exclude Medicaid cuts, work requirements, or any changes that limit funding or eligibility, from budget reconciliation or other legislation. People with disabilities, older adults, family caregivers and their children, direct care workers, and other low-income individuals and families depend on Medicaid every day for their health, safety, and independence. (April 28,  2025) - Download [ PDF ] Long Term Services and Supports Task Force Medicaid Budget Reconciliation DAC - CCD FAQ Below are some answers to frequently asked questions about Medicaid, Medicaid’s funding structure, and the proposed changes included in the proposals for budget reconciliation. (April 24,  2025) - Download [ PDF ] Long Term Services and Supports Task Force Letter Urging House Members to Reject FY 2025 Budget Resolution The co-chairs of the Disability and Aging Collaborative (DAC) and the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD) write to urge you to reject the FY 2025 budget resolution passed out of committee. (February 21,  2025) - Download [ PDF ] Long Term Services and Supports Task Force CCD/DAC Letter to Senate Opposing Medicaid Cats The undersigned members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write to urge you to exclude Medicaid cuts, work requirements, or any changes that limit funding or eligibility, from budget reconciliation or other legislation. (February 11,  2025) - Download [ PDF ] Long Term Services and Supports Task Force Letter to EC from Disability Aging Advocates--No Cuts to Medicaid The undersigned members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write to urge you to exclude Medicaid cuts, work requirements, or any changes that limit funding or eligibility, from budget reconciliation or other legislation. (January 22,  2025) - Download [ PDF ] Long Term Services and Supports Task Force Fast Facts about Medicaid and Disability People with disabilities depend on Medicaid every day for their health, safety, and independence. Medicaid is our communities’ lifeline. Below are 9 fast facts and figures explaining how Medicaid helps people with disabilities. (January 14,  2025) - Download [ PDF ] Long Term Services and Supports Task Force Hill Leave Behind Disability Aging Sign On No Cuts to Medicaid January The undersigned members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write to urge you to exclude Medicaid cuts, work requirements, or any changes that limit funding or eligibility, from budget reconciliation or other legislation. (January 9,  2025) - Download [ PDF ]