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HEALTH
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Health Task Force
CCD Sign-on for OSTP RFI on Disability Equity
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force and other CCD members appreciate the opportunity to provide comments on how the federal government can improve its ability to make data-informed policy decisions that advance equity for individuals with disabilities.1
(July 15, 2024) - Download [ PDF ] |
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Health Task Force
CCD Health and Rights Task Force letter opposing Sec. 722 of the House Agriculture-FDA Appropriations Bill
We, the undersigned members of the Health and Rights Task Forces and fellow members of the Consortium for Constituents with Disabilities (CCD), are writing to you today to express strong opposition to section 722 of the Agriculture, Rural Development, Food and Drug Administration, and Related Agencies funding bill.1 This rider provision would prohibit the Food and Drug Administration (FDA) from banning devices or their use to the extent that they are authorized or ordered by a court, and thus circumvent decades of advocacy against the use of contingent electric shock on people with disabilities.
(July 8, 2024) - Download [ PDF ] |
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Health Task Force
CCD comments on DOJ ADA Title II MDE Docket No 2024-0001-0001
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Rights and Health Task Forces and fellow CCD members write to comment on the Notice of Proposed Rulemaking (NPRM), Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities.
(February 12, 2024) - Download [ PDF ] |
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Health Task Force
CCD Comments on the Interim Final Rule (IFR)- Enforcement of State Compliance with Reporting and Federal Medicaid Renewal Requirements under the Social Security Act.
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Care and Long-Term Services and Supports (LTSS) task forces write to comment on the Interim Final Rule (IFR)- Enforcement of State Compliance with Reporting and Federal Medicaid Renewal Requirements under the Social Security Act.
(February 2, 2024) - Download [ PDF ] |
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Health Task Force
Annual Report - Health Task Force
(January 9, 2024) - Download [ PDF ] |
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Health Task Force
CCD Comments 2025 Notice Benefit Payment Parameter
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force are writing in response to the 2025 Notice of Benefit and Payment Parameters (NBPP) proposed rule.
(January 8, 2024) - Download [ PDF ] |
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Health Task Force
CCD Comments on American Community Survey Questions
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Rights and Health Task Forces and fellow CCD members appreciate the opportunity to provide comments on the Census Bureau’s proposed changes to the 2025 American Community Survey questions.
(December 19, 2023) - Download [ PDF ] |
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Health Task Force
CCD SSTF and HTF Comments NPRM Rental Subsidy
The undersigned organizations of the Consortium for Constituents with Disabilities (CCD), including CCD’s Social Security Task Force (SSTF) and Housing Task Force (HTF), thank you for the opportunity to address the proposed expansion of the Rental Subsidy Policy for Supplemental Security Income (SSI) Applicants and Recipients.
(October 23, 2023) - Download [ PDF ] |
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Health Task Force
CCD SSTF HTF Comments NPRM Rental Subsidy
The undersigned organizations of the Consortium for Constituents with Disabilities (CCD), including CCD’s Social Security Task Force (SSTF) and Housing Task Force (HTF), thank you for the opportunity to address the proposed expansion of the Rental Subsidy Policy for Supplemental Security Income (SSI) Applicants and Recipients.
(October 22, 2023) - Download [ PDF ] |
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Health Task Force
CCD MHPAEA Comments
Thank you for the opportunity to comment on FR–51552 Requirements Related to the Mental Health Parity and Addiction Equity Act (MHPAEA); Request for Comment. Please accept this letter as the comments of the undersigned Co-Chairs and members of the Consortium for Constituents with Disabilities (“CCD”), Health Task Force.
(October 16, 2023) - Download [ PDF ] |
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Health Task Force
CCD Education and Health Task Force Comments Medicaid NPRM
The undersigned members of the Consortium for Constituents with Disabilities (CCD) appreciate the opportunity to provide comments on the Office of Special Education and Rehabilitative Services, Department of Education’s notice of proposed rulemaking (NPRM) to “amend the Individuals with Disabilities Education Act (IDEA) Part B regulations to remove the requirement for public agencies to obtain parental consent prior to accessing for the first time a child's public benefits or insurance (e.g., Medicaid, Children's Health Insurance Program (CHIP)) to provide or pay for required IDEA Part B services.”
(August 1, 2023) - Download [ PDF ] |
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Health Task Force
Letter of support on HR 485 from members of the CCD Health and Rights Task Forces
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(July 13, 2023) - Download [ PDF ] |
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Health Task Force
CCD Health and LTSS Task Force Comments on the Medicaid and CHIP Managed Care Access, Finance, and Quality Proposed Rule
The undersigned members of the Consortium for Constituents with Disabilities (CCD) appreciate the opportunity to provide comments on the Centers for Medicare & Medicaid Services’ (CMS’s) proposed regulation on Medicaid managed care.
(July 3, 2023) - Download [ PDF ] |
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Health Task Force
LTSS and Health Task Force Comments on Medicaid Access Rule
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(June 30, 2023) - Download [ PDF ] |
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Health Task Force
CCD Letter Urging Immediate Publication of Proposed Section 504 HHS Regulations
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(April 26, 2023) - Download [ PDF ] |
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Health Task Force
CCD Comments on Proposed Regulations to Advance Interoperability and Improve Prior Authorization Processes
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(March 13, 2023) - Download [ PDF ] |
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Health Task Force
Health and LTSS Task Force letter to CMS on Medicaid Unwinding.
We, the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health and Long-Term Services and Supports Task Forces write regarding the unwinding of the Medicaid continuous coverage requirement. The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 9, 2023) - Download [ PDF ] |
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Health Task Force
CCD 2022 Health Task Force Annual Report
(January 16, 2023) - Download [ PDF ] |
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Health Task Force
Health Task Force Comments on National Provider Directory
We, the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force write in response to the Request for Information(RFI): National Directory of Healthcare Providers & Services (NDH).
(December 6, 2022) - Download [ PDF ] |
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Health Task Force
Comments Submitted for Medicaid Eligibility and Enrollment Streamlining Proposed Rule
The Consortium for Constituents with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(November 7, 2022) - Download [ PDF ] |
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Health Task Force
CCD Letter on IRA Implementation
We, the undersigned members of the Consortium for Constituents with Disabilities (CCD) write regarding the implementation of the prescription drug provisions of the Inflation Reduction Act (IRA) of 2022 (PL 117-169). We look forward to the forthcoming beneficiary protections in the IRA and to working with the Centers for Medicare & Medicaid Services (CMS) and the rest of the Department to implement these protections.
(October 25, 2022) - Download [ PDF ] |
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Health Task Force
CCD/DAC Core Measure Set Proposed Rule Comments
The undersigned organizations support efforts to strengthen data collection and quality reporting in Medicaid and CHIP, including mandatory state reporting of outcomes measures important to individuals using the services. It is essential to include policy changes that identify health disparities and improve health equity in these vital programs.
(October 21, 2022) - Download [ PDF ] |
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Health Task Force
CCD 1557 Comments
The undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Care, Long Term Services and Supports, and Rights Task Forces write to comment on the notice of proposed rulemaking referenced above. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(October 3, 2022) - Download [ PDF ] |
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Health Task Force
CCD Letter in Support of House Legislation to Fix SCOTUS Holding on Equitable Health Benefits
On behalf of the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, we write to thank you for introducing H.R. 8594, the Restore Protections for Dialysis Patients Act, and to urge your colleagues in the House to support this bipartisan, bicameral bill.
(September 16, 2022) - Download [ PDF ] |
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Health Task Force
CCD Letter in Support of Senate Legislation to Fix SCOTUS Holding on Equitable Health Benefits
On behalf of the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, we write to thank you for introducing S. 4750, the Restore Protections for Dialysis Patients Act, and to urge your colleagues in the Senate to support this bipartisan, bicameral bill.
(September 15, 2022) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Comments on 2023 HOPPS Proposed Rule
On behalf of the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, we write to provide comments on the Hospital Outpatient Prospective Payment System (OPPS) proposed rule for calendar year (CY) 2023, specifically to comment on the Centers for Medicare and Medicaid Services’ (CMS’) proposal to address dental surgical services provided in hospital settings.
(September 13, 2022) - Download [ PDF ] |
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Health Task Force
2023 Physician Fee Schedule Comment Letter
On behalf of the undersigned members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, we are pleased to provide the Centers for Medicare & Medicaid Services (CMS) comments on the proposals, request for information, and modifications on:
(September 6, 2022) - Download [ PDF ] |
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Health Task Force
CCD Re: Support for Washington State’s Section 1332 Waiver Application
The undersigned members of the Consortium for Constituents with Disabilities (CCD) appreciate the opportunity to provide comments on Washington State’s Section 1332 Waiver Application (the waiver). We write in strong support of the waiver as an important step to improve health coverage for Washington State residents, including people with disabilities and chronic health conditions.
(July 14, 2022) - Download [ PDF ] |
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Health Task Force
CCD and NHLP Letter To HUD
As rents soar across the country and the market becomes increasingly competitive, it is critical to keep HUD housing programs accessible to people with disabilities. The National Housing Law Project and the Consortium for Constituents with Disabilities write today to urge HUD to adopt our regulatory recommendations related to the treatment of disbursements from Special Needs Trusts (SNTs) and to illustrate how HUD’s current interpretation of its income rules is creating harmful outcomes for assisted families. HUD must amend 24 CFR Sec. 5.609(c) to clarify that disbursements of principal from SNTs are excluded from income if the source of the funds were otherwise excluded.
(July 12, 2022) - Download [ PDF ] |
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Health Task Force
Request for Information: Access to Coverage and Care in Medicaid & CHIP
Objective 1: Medicaid and CHIP reaches people who are eligible and who can benefit from such coverage. CMS is interested in identifying strategies to ensure that individuals eligible for Medicaid and CHIP are aware of coverage options and how to apply for and retain coverage. Eligible individuals should be able to apply, enroll in, and receive benefits in a timely and streamlined manner that promotes equitable coverage.
(April 18, 2022) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Letter on Access to Dental Surgical Services
The undersigned members of the CCD Health Task Force request that CMS take action to address a longstanding problem for Americans with disabilities: the lack of timely operating room access for individuals with disabilities in need of dental surgical services.
(March 24, 2022) - Download [ PDF ] |
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Health Task Force
CCD Health TF MA and Part D Programs Comment Letter
The undersigned members of the CCD Health Task Force and allies appreciate the opportunity to respond to the above referenced proposed rule and requests for information (RFIs). The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society free from racism, ableism, sexism, and xenophobia, as well as LGBTQ+ based discrimination and religious intolerance.
(March 7, 2022) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Letter on Covid Test Accessibility
The Consortium for Citizens with Disabilities (CCD) Health Task Force co-chairs write to you regarding President Biden’s rollout of the free at-home rapid COVID-19 tests for all people in the United States. CCD is deeply concerned for the people with disabilities in the United States who, because the tests are physically inaccessible to them, will not be able to take advantage of the rollout. We ask that the administration implement alternatives for these individuals.
(January 27, 2022) - Download [ PDF ] |
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Health Task Force
NBPP 2023 Health Task Force Comments Submitted
On behalf of the undersigned members of the Consortium for Citizens with Disabilities’ (CCD) Health Task force, we submit comments on the Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2023 proposed rule (hereinafter NBPP 2023 Rule)
(January 27, 2022) - Download [ PDF ] |
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Health Task Force
Health Task Force 2021 Annual Report
(January 11, 2022) - Download [ PDF ] |
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Health Task Force
CCD Health and LTSS Task Forces comments to the HHS Strategic Plan
The Consortium for Citizens with Disabilities (CCD) Health and Long Term Services and Supports Task Forces write in response to your request for public comment on the Draft HHS Strategic Plan for FY 2022-2026. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(November 5, 2021) - Download [ PDF ] |
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Health Task Force
Letter to CDC on Need for Better Guidance on COVID-19 Vaccine Boosters and Additional Doses
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned members of the CCD Health Task Force and allies are writing to ask for more guidance and outreach on vaccine boosters and additional doses for people with disabilities and chronic conditions.
(October 19, 2021) - Download [ PDF ] |
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Health Task Force
CCD Health TF Comment Letter on IRF RCD
We, the undersigned members of the Consortium for Citizens with Disabilities Health Task Force, appreciate the opportunity to comment on the Centers for Medicare & Medicaid Services’ (CMS) proposed Review Choice Demonstration (RCD) for inpatient rehabilitation facilities (IRFs). The RCD would impose 100% medical review by CMS contractors on every Medicare beneficiary admitted to an IRF in up to 17 states over a five-year demonstration period. The premise of this expansive audit demonstration is to help ensure that Medicare beneficiaries admitted to IRFs are appropriate patients to be served in that setting of care.
(October 8, 2021) - Download [ PDF ] |
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Health Task Force
Comments on Requirements Related to Surprise Billing Part I
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the undersigned members of the CCD Health Task Force, thank you for the opportunity to comment on this important consumer protection. We are strongly supportive of the efforts to protect people from surprise bills. Our comments here are limited to the accessibility of information and other areas of rulemaking with a particular impact on people with disabilities.
(September 7, 2021) - Download [ PDF ] |
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Health Task Force
Response to Request for Information on Design Considerations for Legislation to Develop a Public Health Insurance Option
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write in response to your request for information on design considerations for legislation to develop a public health insurance option. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 30, 2021) - Download [ PDF ] |
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Health Task Force
Comments on Proposed Rule: Updating Payment Parameters, Section 1332 Waiver Implementing Regulations, and Improving Health Insurance Markets for 2022 and Beyond
We the undersigned members of the Consortium for Citizens with Disabilities Health Task Force appreciate the opportunity to comment on the Centers for Medicare & Medicaid Services (CMS) proposed rule - Updating Payment Parameters, Section 1332 Waiver Implementing Regulations, and Improving Health Insurance Markets for 2022 and Beyond (hereinafter “UPP Rule”).
(July 28, 2021) - Download [ PDF ] |
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Health Task Force
Letter to Congress on Health Priorities for Recovery from Health and Long-Term Services and Supports Task Forces
The undersigned members of the Health and Long-Term Services and Supports task forces of the Consortium for Citizens with Disabilities (CCD) write to urge Congress to include the $400 billion investment in Medicaid HCBS infrastructure and other critical investments to make health care more accessible and affordable for people with disabilities in the next recovery package.
(June 10, 2021) - Download [ PDF ] |
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Health Task Force
Letter to HHS Office for Civil Rights on Accessibility and Prioritization of the COVID Vaccine for the Disability Community
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned members of the CCD Health Task Force and allies write to provide input regarding allocation and accessibility of the coronavirus vaccines authorized for emergency use.
(April 8, 2021) - Download [ PDF ] |
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Health Task Force
CHAMPVA Childrens Protection Act Letter of Support from Vets and Health Task Forces to Rep. Brownley
The undersigned members of the Consortium for Citizens with Disabilities Veterans Task Force and Health Care Task Force thank you for introducing H.R. 1801, the Civilian Health and Medical Program of the Department of Veterans Affairs (CHAMPVA) Children’s Care Protection Act. CCD is a coalition of more than 100 national disability rights, advocacy, consumer, provider and self-advocates organizations representing the more than 61 million Americans with disabilities.
(March 29, 2021) - Download [ PDF ] |
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Health Task Force
CHAMPVA Childrens Protection Act Letter of Support from Vets and Health Task Forces to Sen. Brown
The undersigned members of the Consortium for Citizens with Disabilities Veterans Task Force and Health Care Task Force thank you for introducing S. 727, the Civilian Health and Medical Program of the Department of Veterans Affairs (CHAMPVA) Children’s Care Protection Act. CCD is a coalition of more than 100 national disability rights, advocacy, consumer, provider and self-advocates organizations representing the more than 61 million Americans with disabilities.
(March 29, 2021) - Download [ PDF ] |
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Health Task Force
Letter to HHS regarding concerns about pending rule and guidance on Disability Discrimination in Health and Human Service Programs or Activities, Proposed Modifications to the HIPAA Privacy Rule, and the Affordable Care Act’s Nondiscrimination Protections
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Rights and Health Task Forces write to urge HHS to move forward with rules and guidance on the topics that are the subject of the above-captioned Request for Information, to withdraw and revise the above-captioned proposed rule concerning health privacy rights, and to revisit the above-captioned final rule implementing the Affordable Care Act’s non-discrimination provisions.
(March 2, 2021) - Download [ PDF ] |
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Health Task Force
AAPD-CCD letter to Secretary-Designate Becerra with disability health care priorities following up on disability groups' meeting
Thank you for meeting with our organizations to discuss the disability community’s priorities for the Biden Administration. Our nation is currently home to more than 61 million people with disabilities, and this number grows every day. The disability community is incredibly diverse in both identity and experience. Disability is most prevalent in women and in Black, Indigenous, and people of color.
(January 28, 2021) - Download [ PDF ] |
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Health Task Force
Annual Report - Health Task Force
(January 8, 2021) - Download [ PDF ] |
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Health Task Force
Joint LTSS and Health Task Force Comments on CMS' COVID-19 Interim Final Rule.
The Consortium for Citizens with Disabilities (CCD) Health and Long Term Services and Supports Task Forces appreciate the opportunity to submit comments on the Centers for Medicare and Medicaid Services (CMS) Interim Final Rule “Additional Policy and Regulatory Revisions in Response to the COVID-19 Public Health Emergency."
(January 4, 2021) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Co-Chairs Comment Letter on NBPP for Plan Year 2022
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health Task Force, appreciate the opportunity to comment on this proposed rule.
(December 23, 2020) - Download [ PDF ] |
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Health Task Force
Comments on HHS' proposed 'Securing Updated and Necessary Statutory Evaluations Timely' Regulation.
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(December 4, 2020) - Download [ PDF ] |
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Health Task Force
Letter from the CCD LTSS, Health, and Rights Task Force to the Biden-Harris Transition COVID-19 Advisory Board
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. CCD members represent a broad range of stakeholders – people with disabilities and their families, older adults, disability service providers and workers, healthcare professionals, and state systems that provide disability services – who advocate on behalf of adults and children with all types of disabilities, including people with physical, intellectual, developmental, and mental health disabilities, chronic health conditions, and older adults.
(November 20, 2020) - Download [ PDF ] |
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Health Task Force
CCD Vaccine Allocation Principles October 2020
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The COVID-19 pandemic has required our health systems to prepare for and consider the implications of allocation of scarce medical resources in a number of contexts, and the same remains true regarding allocation of a potential coronavirus vaccine.
(October 23, 2020) - Download [ PDF ] |
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Health Task Force
CCD Comments to CDC Advisory Committee on Immunization Practices
Thank you for the opportunity to provide public comment for the October 2020 meeting of the Advisory Committee on Immunization Practices (ACIP) at the Centers for Disease Control and Prevention (CDC). The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(October 23, 2020) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force PFS Comments CY 2021
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the Calendar Year 2021 proposed rule for payment policies under the Physician Fee Schedule (the Proposed Rule). CCD is the largest coalition of national organizations advocating together for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(October 5, 2020) - Download [ PDF ] |
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Health Task Force
CCD Comments from LTSS and CCD co-chairs on HHS Good guidance proposed reg.
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations advocating together for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health and Long Term Services and Supports Task Forces, thank you for the opportunity to comment on the proposed rule.
(September 16, 2020) - Download [ PDF ] |
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Health Task Force
CCD OCR Vaccine Allocation Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health, Long Term Services and Supports, and Rights Task Forces, write to provide input regarding allocation of a potential coronavirus vaccine.
(September 9, 2020) - Download [ PDF ] |
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Health Task Force
CCD Vaccine Allocation Comments
Thank you for the opportunity to comment on the Discussion Draft of the Preliminary Framework for Equitable Allocation of COVID-19 Vaccine. The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health, Long Term Services and Supports, and Rights Task Forces, appreciate the opportunity to comment on this important framework.
(September 4, 2020) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Telehealth Principles July 2020
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(August 7, 2020) - Download [ PDF ] |
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Health Task Force
CCD Rights, LTSS and Health TF Letter re Senate COVID Package
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights, Health, and Long-Term Services and Supports Task Forces write to express our strong opposition to the SAFE TO WORK Act and deep concern about critically important measures that are not included in other portions of the Senate’s COVID-19 relief package. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 30, 2020) - Download [ PDF ] |
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Health Task Force
CCD Health TF Comment o Medicaid Value-Based Purchasing Arrangements
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We, the co-chairs of the CCD Health Task Force thank you for the opportunity to comment on the proposed rule. Our comments are limited to the definitions of value-based purchasing arrangements.
(July 20, 2020) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force covid package 4 letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Health Task Force write to underscore our support for urgent legislation to help all Americans, including people with disabilities, to cope with the ongoing risks and ramifications of the COVID-19 pandemic. A fourth COVID-19 response package is necessary to provide critical resources to the disability community, which has been disproportionately affected by the disease.
(July 6, 2020) - Download [ PDF ] |
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Health Task Force
Health and LTSS Task Forces Letter of Support for Coronavirus Medicaid Support Act
On behalf of the Consortium for Citizens with Disabilities (CCD) task forces on Health and Long-Term Services and Supports, we write to express our support for the Coronavirus Medicaid Response Act (S. 4108)
(July 6, 2020) - Download [ PDF ] |
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Health Task Force
CCD Co-chairs letter with comments on the OK 1115 proposal
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on Oklahoma’s SoonerCare 2.0 1115 project proposal. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. For the reasons stated below, we urge HHS not to approve the proposed SoonerCare 2.0 demonstration.
(June 26, 2020) - Download [ PDF ] |
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Health Task Force
Comments on Coordinating Care From Out-of-State Providers for Children on Medicaid
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) task forces on Health, Education, Long-Term Services and Supports, and Rights, appreciate the opportunity to comment on this Request for Information. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(June 3, 2020) - Download [ PDF ] |
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Health Task Force
CCD HTF Medicare Advantage (MA) and Part D plans Rule 2021 Comments
We, the co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the Centers for Medicare and Medicaid Services’ (CMS) proposed rule outlining policy and technical changes for the Medicare Advantage, Medicare Part D, and other programs. This letter primarily addresses Medicare Advantage (MA) and Part D plans.
(April 6, 2020) - Download [ PDF ] |
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Health Task Force
Letter re COVID-19 and Disability Discrimination
We write as co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights and Health Task Forces to urge you to ensure that, if the current pandemic results in government decisions to ration treatment, decisions about how medical treatment should be allocated are made without discriminating based on disability. The CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 20, 2020) - Download [ PDF ] |
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Health Task Force
CCD letter to Secretary Alex Azar
The undersigned members of the Consortium for Citizens with Disabilities (CCD) strongly condemn the Centers for Medicare & Medicaid Services’ (CMS’s) new policy inviting states to apply for block grants and per capita caps, as announced in its January 30, 2019 Dear State Medicaid Director Letter.
(March 20, 2020) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force NBPP Comments
We, the co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the Notice of Benefit and Payment Parameters for 2021. 1 (the Proposed Rule). The CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 2, 2020) - Download [ PDF ] |
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Health Task Force
CCD Comment on Medicaid Fiscal Accountability Rule
The Consortium for Citizens with Disabilities (CCD) Health Task Force would like to thank you for the opportunity to comment on the proposed Medicaid Fiscal Accountability Regulation. The undersigned co-chairs of the CCD Health Task Force are seriously concerned that the proposed rule would have a negative impact on states’ ability to finance their Medicaid programs and we strongly recommend that the Centers for Medicare and Medicaid Services (CMS) withdraw the parts of the proposed rule that would substantively change Medicaid financing mechanisms.
(January 31, 2020) - Download [ PDF ] |
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Health Task Force
Annual Report - Health Task Force
(January 9, 2020) - Download [ PDF ] |
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Health Task Force
CCD Comment on TennCare II Amendment 42 Block Grant
On behalf of the Consortium for Citizens with Disabilities (CCD) Health Task Force we urge you to reject Tennessee’s proposed amendment, known as the TennCare II Demonstration Amendment 42. Tennessee’s proposal would fundamentally undermine the Tennessee’s Medicaid program by significantly reducing federal oversight and accountability for beneficiary protections. The Health Task Force opposes the conversion of the federal Medicaid program to a block grant, and we oppose the conversion of any portion of Tennessee’s TennCare program to a block grant.
(December 27, 2019) - Download [ PDF ] |
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Health Task Force
CCD letter to the Senate Finance committee regarding the Prescription Drug Price Relief Act
Thank you for your leadership in addressing rising prescription drug costs. We the undersigned members of the Consortium for Citizens with Disabilities Health Task Force appreciate the opportunity to weigh in on The Prescription Drug Price Reduction Act (PDPRA) of 2019 and look forward to working with Congress as prescription drug legislation moves forward.
(November 27, 2019) - Download [ PDF ] |
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Health Task Force
2019 open enrollment
If you're uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s marketplace or health insurance exchange. During “open enrollment”, private health insurance options can be reviewed and coverage can be purchased. People with low and moderate incomes may be able to get financial help to pay for health insurance coverage. Assistance to pay for premiums and other cost-sharing may be available for individuals and families, depending on which plan is purchased.
(November 4, 2019) - Download [ PDF ] |
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Health Task Force
CCD Letter HR 3 Amendment in the Nature of a Substitute
Thank you for your leadership in addressing rising prescription drug costs. We appreciate the opportunity to weigh in on HR 3. We are writing regarding the proposed amendment to HR 3 and in follow up to our letter of September 24, 2019.
(October 17, 2019) - Download [ PDF ] |
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Health Task Force
CCD Letter on HR 3 the Lower Drug Costs Now Act of 2019
Thank you for your leadership in addressing rising prescription drug costs. We appreciate the opportunity to weigh in on HR 3. The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(September 24, 2019) - Download [ PDF ] |
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Health Task Force
CCD Comment Letter on Medicaid Access Rule
The Consortium for Citizens with Disabilities (CCD) Health and Long Term Supports and Services Task Forces appreciates the opportunity to provide comments on the proposed rule regarding assuring access to covered services in the Medicaid program.
(September 13, 2019) - Download [ PDF ] |
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Health Task Force
Re: A proposed rule on non-discrimination in health care, related to ACA section 1557.
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We write to express our opposition to the U.S. Department of Health and Human Services (HHS) notice of proposed rulemaking (NPRM) on Section 1557 of the Affordable Care Act.
(August 13, 2019) - Download [ PDF ] |
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Health Task Force
CCD Positions on Access to Prescription Drugs
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(June 10, 2019) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force provides comments on the sale of insurance across state lines request for information.
The Consortium for Citizens with Disabilities Health Task Force (“CCD HTF”) appreciates the opportunity to comment on the Centers for Medicare and Medicaid Services (“CMS”) request for information (“RFI”) regarding the sale of individual health insurance across state lines. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 6, 2019) - Download [ PDF ] |
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Health Task Force
CCD Comments - Rebate Safe Harbor Proposed Rule.pdf
The Consortium for Citizens with Disabilities (CCD) Health Task Force and the undersigned organizations appreciate the opportunity to comment on the proposed rule amending the safe harbor regulations to the Federal anti-kickback statute regarding rebates in Medicare and Medicaid.
(April 8, 2019) - Download [ PDF ] |
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Health Task Force
CCD Disability Principles for Health Care Reform
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. As we begin a new Congress, the Consortium for Citizens with Disabilities (CCD) Health Task Force issues these updated principles for health care reform efforts.
(March 27, 2019) - Download [ PDF ] |
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Health Task Force
NBPP Comments
The co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force write in response to the proposed rule, Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2020. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(February 19, 2019) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force comments on the Modernizing Part D and Medicare Advantage
The CCD Health Task Force appreciates the opportunity to provide comments on the Modernizing Part D and Medicare Advantage to Lower Drug Prices and Reduce Out-of-Pocket Expenses proposed rule issued by the Centers for Medicare and Medicaid Services (CMS). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(January 25, 2019) - Download [ PDF ] |
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Health Task Force
CCD Re: Medicaid Managed Care NPRM Comments
The co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force write in response to the proposed rule, Medicaid Program; Medicaid and Children’s Health Insurance Plan (CHIP) Managed Care, RIN 0938–AT40, CMS–2408–P. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(January 14, 2019) - Download [ PDF ] |
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Health Task Force
2018 CCD Health Task Force Annual Report
(January 11, 2019) - Download [ PDF ] |
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Health Task Force
CCD Disability Principles for Inclusion of Long Term Service and Supports (LTSS) in Universal Health Care
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. This document lays out principles that the undersigned members of CCD believe must be incorporated into any universal or “For All” health care system in the United States.
(August 27, 2018) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force responds to the release of the Final Rule on short term health care plans.
The Consortium for Citizens with Disabilities (CCD) Health Task Force is disappointed that the Administration finalized rules increasing the availability of short-term limited duration (STLD) health plans that do not provide protections for people with pre-existing conditions and opposes the Administration’s ongoing efforts to undermine implementation of the Affordable Care Act.
(August 2, 2018) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force provided comments on the questions raised in the HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket (OOP) Costs.
The CCD Health Task Force appreciates the opportunity to provide comments on the questions raised in the HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket (OOP) Costs. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. The health task force is focused on health care policy and the impact on people with disabilities.
(July 16, 2018) - Download [ PDF ] |
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Health Task Force
Access Rule Comments
The co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force write in response to the proposed rule, Medicaid Program; Methods for Assuring Access to Covered Medicaid Services—Exemptions for States With High Managed Care Penetration Rates and Rate Reduction Threshold, CMS–2406–P, RIN 0938–AT41. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 22, 2018) - Download [ PDF ] |
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Health Task Force
CCD Letter to CMS on Electronic Visit Verification (EVV)
The Long-Term Services and Supports, Health and Rights Task Forces of the Consortium for Citizens (CCD) are writing to express our extreme concerns with the lack of timely guidance and official stakeholder input around the implementation of Electronic Visit Verification (EVV) for personal care and home health services. A significant delay in implementation is needed to ensure that the privacy and civil rights of consumers are protected; that the administrative and financial burdens on service providers is neither onerous nor duplicative; and that states are able to design and implement their EVV programs in a thoughtful, deliberative manner.
(May 17, 2018) - Download [ PDF ] |
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Health Task Force
CCD SUD IMD Letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Health, Long-Term Services and Supports, and Rights Task Forces write in opposition to proposals that expands coverage of institutional services in Medicaid without addressing gaps in Medicaid community services. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 17, 2018) - Download [ PDF ] |
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Health Task Force
CCD Health task force sent recommending Dr. Ayers to serve on the PCORI Board of Governors
On behalf of the Health Task Force of the Consortium for Citizens with Disabilities (CCD) we are writing in support of the nomination of Dr. Kara Ayers, Associate Director and an Assistant Professor at the University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD), to the Board of Governors for the Patient-Centered Outcomes Research Institute (PCORI).
(May 4, 2018) - Download [ PDF ] |
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Health Task Force
CCD Comment Letter on Short-Term, Limited-Duration Insurance (RIN 0938-AT48)
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to comment on the proposed rule entitled Short-Term, Limited-Duration Insurance1 (the Proposed Rule) issued by the Department of Health and Human Services, Department of Treasury, and Department of Labor (collectively, “the tri-agencies”). The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 23, 2018) - Download [ PDF ] |
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Health Task Force
CCD has issued a response to the CMS guidance allowing states to impose barriers to Medicaid edibility in the form of work requirements.
The undersigned organizational members of the Consortium for Citizens with Disabilities (CCD) and other supporting organizations write to express our strong opposition to the Centers for Medicare and Medicaid Services (CMS) January 11, 2017 guidance authorizing states to implement unprecedented work requirements for the Medicaid program, and its subsequent approval of Kentucky’s waiver application seeking to implement work requirements.
(February 7, 2018) - Download [ PDF ] |
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Health Task Force
Annual Report - Health Task Force
(January 22, 2018) - Download [ PDF ] |
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Health Task Force
The CCD Health task force provides comments on the Notice of Benefit and Payment Parameters proposed rule for 2019.
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the proposed rule HHS Notice of Benefit and Payment Parameters for 2019 (the Proposed Rule).
(November 27, 2017) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force has developed this fact sheet on the Affordable Care Act open enrollment beginning November 1, 2017
If you're uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s marketplace or health insurance exchange.
(October 27, 2017) - Download [ PDF ] |
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Health Task Force
Senate HELP hearing on wellness programs/healthy choices
Thank you for inviting me to testify concerning this important issue. My name is Jennifer Mathis. I serve as Director of Policy and Legal Advocacy at the Bazelon Center for Mental Health Law, a national non-profit organization that works to promote equal opportunities for individuals with mental disabilities in all aspects of life through litigation, policy advocacy and public education.
(October 19, 2017) - Download [ PDF ] |
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Health Task Force
CCD write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal.
(September 25, 2017) - Download [ PDF ] |
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Health Task Force
Graham-Cassidy-Heller-Johnson (GCHJ) Letter to Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal. As we have commented on multiple proposals considered by the Senate, we cannot overstate the danger facing the millions of adults and children with disabilities if the proposal’s Medicaid provisions are adopted.
(September 19, 2017) - Download [ PDF ] |
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Health Task Force
CCD Better Care Reconciliation Act (BCRA) Letter to the Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) strongly oppose the revised Better Care Reconciliation Act (BCRA). While we have serious concerns about many provisions of the BCRA, including a new provision that would dramatically increase costs for people with preexisting conditions, we cannot overstate the danger facing the millions of adults and children with disabilities if the bill’s Medicaid proposals are adopted by the Senate.
(July 24, 2017) - Download [ PDF ] |
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Health Task Force
HHS RFI Response RIN 0938-ZB39, CMS-9928-NC
The Co-Chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the request for information (RFI) referenced above. The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 12, 2017) - Download [ PDF ] |
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Health Task Force
Statement of the Consortium for Citizens with Disabilities on the Congressional Budget Office’s Score of the Better Care Reconciliation Act
Last night, the Congressional Budget Office (CBO) released a score of the Senate healthcare bill, the Better Care Reconciliation Act (BCRA). The score confirmed our worst concerns about the bill, estimating that Medicaid will be cut by $772 billion and that 15 million people will lose Medicaid coverage over the next 10 years, in addition to millions more Americans losing access to affordable and comprehensive coverage in the private markets.
(June 27, 2017) - Download [ PDF ] |
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Health Task Force
Statement: CCD opposed to the Senate’s Better Care Reconciliation Act
The Consortium for Citizens with Disabilities (CCD) is strongly opposed to the Senate’s Better Care Reconciliation Act. It is simply unconscionable to restructure and decimate Medicaid, which provides healthcare services and supports that maintain the health, function, independence, and well-being of 10 million enrollees with disabilities and their families. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(June 23, 2017) - Download [ PDF ] |
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Health Task Force
For Immediate Release: Stop Medicaid Cuts and Caps and Protect the Lives of People with Disabilities
June 6, 2017, Washington, DC—Today, Senators Casey, Wyden, Van Hollen, Duckworth and Hassan joined hundreds of advocates, families and providers from across the country to demand that the Senate stop the Medicaid cuts and caps that are currently included in the American Health Care Act (AHCA). In addition to the rally in Washington, DC, there were coordinated events and actions that took place across the country.
(June 6, 2017) - Download [ PDF ] |
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Health Task Force
Letter to the Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD), write in response to the House of Representative’s passage of the American Health Care Act (AHCA). We understand that the Senate will be drafting a separate bill, which may adopt parts of AHCA.
(May 19, 2017) - Download [ PDF ] |
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Health Task Force
Protect the ACA’s Gains for People with Disabilities
Members of the Consortium for Citizens with Disabilities strongly oppose repealing key provisions of the Affordable Care Act (ACA) without simultaneously passing a replacement plan that maintains or improves existing coverage, access, and affordability. Unfortunately, the American Health Care Act (AHCA) passed by the House would abandon or undermine key enrollee protections, and if enacted would endanger millions of people with disabilities who have gained affordable coverage and access to needed services under the ACA.
(May 19, 2017) - Download [ PDF ] |
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Health Task Force
Medicaid Per Capita Caps and Block Grants: Devastating for People with Disabilities
Capping the Medicaid program would be devastating to people with disabilities. Medicaid provides health care services and long-term services and supports that maintain the health, function, independence, and well-being of 10 million enrollees with disabilities and, often, their families. For many people with disabilities, being able to access timely needed care is a life or death matter. Block grants or per capita caps place arbitrary limits on federal support for Medicaid, limits unrelated to beneficiaries’ actual health care needs.
(May 19, 2017) - Download [ PDF ] |
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Health Task Force
Statement of the Consortium for Citizens with Disabilities on Passage of the American Health Care Act (AHCA).
Washington DC, May 4, 2017 - The Consortium for Citizens with Disabilities (CCD), the country’s largest coalition of national disability groups, is gravely concerned about the House of Representative’s passage of the American health Care Act. The AHCA will harm tens of millions in the United States, but especially people with disabilities who will face coverage loss, higher costs, and fewer options.
(May 4, 2017) - Download [ PDF ] |
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Health Task Force
CCD LTSS & Health Taskforces respond to amended American Health Care Act legislation
The Consortium for Citizens with Disabilities (CCD) is strongly opposed to the amended American Health Care Act. The amended American Health Care Act retains the original bill’s proposals to dramatically cut Medicaid services that are vital to people with disabilities and seniors through per capita caps, which CCD has opposed.
(April 28, 2017) - Download [ PDF ] |
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Health Task Force
Action Alert: Harmful Health Care Bill is Coming Back – Call Congress Now
CCD is urging coalition members to activate their grassroots during the Congressional recess in opposition to the American Health Care Act. The House of Representatives and the Administration are negotiating changes to the bill which is making it worse for people with disabilities.
(April 6, 2017) - Download [ PDF ] |
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Health Task Force
CCD Statement on the AHCA Cancelled Vote
The Consortium for Citizens with Disabilities is relieved and pleased that the House of Representatives cancelled the vote on the American Health Care Act,” said Kim Musheno, CCD Chair. “This bill would have resulted in millions of people with disabilities losing access to comprehensive, affordable and accessible health care, as well as critical Medicaid services that help them live and participate in the community.
(March 25, 2017) - Download [ PDF ] |
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Health Task Force
CCD responds to American Health Care Act Manager’s Amendment
The Consortium for Citizens with Disabilities remains extremely concerned about the American Health Care Act. The Medicaid per capita caps in the original bill put home and community-based services (HCBS) for people with disabilities at serious risk of major cuts or even elimination, as the CBO noted. The recent manager’s amendment does not resolve these concerns, and in fact, likely exacerbates them.
(March 22, 2017) |
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Health Task Force
CCD weighs in on the American Health Care Act advancing in the House of Representatives repeal and replace bill
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and other national organizations write in response to the American Health Care Act. Despite the extremely limited time for review, we have serious concerns about many parts of this legislation and urge members to oppose it.
(March 17, 2017) - Download [ PDF ] |
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Health Task Force
CCD responds to CBO score of the American Health Care Act
The Congressional Budget Office’s score confirms the Consortium for Citizens with Disabilities’ concern that the American Health Care Act would decimate the Medicaid program and endanger the lives and independence of the more than 10 million people with disabilities who rely on Medicaid. For most people with disabilities, Medicaid is the only source of long-term services and supports.
(March 16, 2017) - Download [ PDF ] |
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Health Task Force
CCD #SaveMedicaid social media action toolkit
On March 16 at 10am, let’s all tell Congress that Medicaid cuts and caps are dangerous and unacceptable. Sign up through the Thunderclap program, and it will automatically send this one message through your Twitter and/or Facebook accounts. Collectively the messages will spread across social media and slam the social feeds of your Members of Congress at once, like a virtual clap of thunder.
(March 13, 2017) - Download [ PDF ] |
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Health Task Force
CCD raises concerns about the House American Health Care Act which repeals major portions fo the Affordable Care Act and caps and cuts the Medicaid program.
The Consortium for Citizens with Disabilities (CCD) is gravely concerned about the American Health Care Act. This is simply unconscionable to pay for the repeal of the Affordable Care Act (ACA) by cutting services for low income individuals with disabilities, adults, older adults, and children.
(March 8, 2017) - Download [ PDF ] |
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Health Task Force
CCD ACTION ALERT: Call Now to Stop Medicaid Cuts and Health Care Repeal
Congress is on a fast track to repeal major portions of the Affordable Care Act (ACA) and to make drastic cuts to the Medicaid program. The level of cuts over time would decimate the Medicaid program.
(March 7, 2017) - Download [ PDF ] |
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Health Task Force
Medicaid Per Capita Caps and Block Grants: Devastating for People with Disabilities
Establishing funding caps for the Medicaid program would be devastating to people with disabilities. Medicaid provides health care services and long-term services and supports that maintain the health, function, independence, and well-being of 10 million enrollees living with disabilities and, often, their families.
(March 2, 2017) - Download [ PDF ] |
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Health Task Force
Protect the ACA’s Gains for People with Disabilities
Members of the Consortium for Citizens with Disabilities strongly oppose repealing key provisions of the Affordable Care Act (ACA) without simultaneously passing a replacement plan that maintains or improves existing coverage, access, and affordability. Losing or undermining key enrollee protections or disrupting care would endanger millions of people with disabilities who have gained coverage under the ACA.
(March 2, 2017) - Download [ PDF ] |
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Health Task Force
CCD Opposes Per Capita Caps that Would Decimate the Medicaid Program
CCD released the following statement expressing our concerns about the House majority leadership’s policy brief on repealing the ACA and helping to pay for it by instituting a Medicaid per capita cap.
(February 21, 2017) - Download [ PDF ] |
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Health Task Force
New URGENT CCD Action Alert ACA and Medicaid
The House of Representatives is expected to introduce a bill to cut Medicaid and the ACA on February 27 and to begin committee work immediately. The result would be two major blows to individuals with disabilities. Reach out to your Federal and state legislators and the Governor’s office in your state and tell them that repealing the ACA and replacing it with a plan that CUTS Medicaid is unacceptable.
(February 20, 2017) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force 2016 Report_Final
(January 10, 2017) - Download [ PDF ] |
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Health Task Force
CCD Letter for Senate on ACA
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD), are aware that the 115th Congress is already hard at work on an aggressive calendar for action starting with the Senate Concurrent Budget Resolution released by Senate Budget Committee Chairman Michael Enzi on January 3, 2017.
(January 9, 2017) - Download [ PDF ] |
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Health Task Force
2017 - Action Alert on Budget Resolution
CCD is urging its members to tell their Senator to vote no on the budget resolution. The Affordable Care Act provides important access to health care, expansions of long term supports and services, nondiscrimination and health insurance reforms and many other critical provisions.
(January 6, 2017) - Download [ PDF ] |
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Health Task Force
CCD Letter on the Affordable Care Act (ACA) to Senators
The undersigned organizations are writing as members of the Consortium for Citizens with Disabilities to express our strong opposition to repealing key provisions of the Affordable Care Act (ACA). This would be particularly harmful without simultaneous enactment of a replacement plan that maintains or improves existing coverage and access.
(December 12, 2016) - Download [ PDF ] |
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Health Task Force
CCD Fact Sheet: People with Disabilities Benefit from the Affordable Care Act
Determining whether health reform proposals can meet the needs of people with disabilities requires analyzing the proposals from a disability perspective.
(December 12, 2016) - Download [ PDF ] |
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Health Task Force
CCD health task force submitted comments on the redesign of the National Health Interview Survey urging them to maintain key disability related questions
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to continue to participate in the review of the proposed changes to the National Health Interview Survey (NHIS). As we have previously stated, the current set of disability questions in the NHIS is critically important to the disability community.
(November 7, 2016) - Download [ PDF ] |
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Health Task Force
The CCD health task force has developed a brief flyer for member to use regarding the open enrollment period for the health plans authorized by the Affordable Care Act.
If you're uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s exchange.
(October 25, 2016) - Download [ PDF ] |
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Health Task Force
The Health Task Force submitted comments on the 2018 Notice of Benefits and Payment Parameters for health insurance plans sold in the marketplaces.
We, the undersigned members of the Consortium for Citizens with Disabilities, thank you for the opportunity to comment on this important rule. The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(October 6, 2016) - Download [ PDF ] |
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Health Task Force
Support and Additional Proposals for the Medicare Affordability and Enrollment Act of 2016
The Co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the Senate Finance Committee’s draft Medicare Affordability and Enrollment Act of 2016, recently circulated legislation to make improvements to the Medicare benefit related primarily to affordability and enrollment.
(August 5, 2016) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force provided comments on the proposed redesign of the National Health Interview Survey.
The CCD Health Task Force appreciates the opportunity to provide comments on the proposed changes to the National Health Interview Survey (NHIS), and wishes to emphasize the importance of the NHIS’ current set of disability questions to the disability community.
(June 30, 2016) - Download [ PDF ] |
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Health Task Force
CCD Comments on MACRA NPRM
The CCD Health Task Force provided comments regarding accessibility and patient provided input as it was addressed in the Notice of Proposed Rulemaking regarding the Merit-based Incentive Payment System and Alternative Payment Model under the Physician Fee Schedule in the Medicare program.
(June 27, 2016) - Download [ PDF ] |
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Health Task Force
CCD TF letter to OPM re ABA ASD coverage
On behalf of the Consortium for Citizens with Disabilities (CCD) Task Force on Health and Task Force on Developmental Disabilities, Autism, and Family Support, we write to thank the Office of Personnel Management (OPM) for directing Federal Employees Health Benefits (FEHB) Program carriers not to exclude coverage of applied behavior analysis (ABA) for the treatment of autism spectrum disorders in the 2017 plan year.
(March 29, 2016) - Download [ PDF ] |
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Health Task Force
Medicare letter to Senate Finance
The CCD Health and Long Term Services and Supports Task Forces provided recommendations to the Senate Finance Committee regarding policy options to improve care for people with chronic health conditions in the Medicare program
(February 1, 2016) - Download [ PDF ] |
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Health Task Force
Comments on wellness plans & GINA
The undersigned members of the Consortium for Citizens with Disabilities (CCD) submit these comments in response to the EEOC’s proposed rule to modify its current rules implementing the Genetic Information Nondiscrimination Act (GINA) and authorize workplace wellness programs to impose large penalties on employees’ covered spouses who decline to disclose disabilityrelated information.
(January 28, 2016) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force submitted comments on the final rule for information relating to access to care in the Medicaid program
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on the final rule addressing access to covered Medicaid services.
(January 8, 2016) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force submitted comments on the final request for information relating to access to care in the Medicaid program
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on the request for information regarding what additional data sources and approaches could be used to determine whether access to care is sufficient.
(January 8, 2016) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Report 2015
(January 7, 2016) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force provides comments on the HHS notice of benefit and payment parameters for Affordable Care Act plans in 2017
As the co-chairs of the Consortium for Citizens with Disabilities Health Task Force, we are writing to provide comments on CMS’s proposed Notice of Benefits and Payments Parameters for 2017.
(December 22, 2015) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Comments on MACRA RFI
Thank you for the opportunity to respond to this Request for Information regarding the Merit-based Incentive Program and Alternative Payment Model in the Medicare program. We, the co-chairs of the Consortium for Citizens with Disabilities Health task force, were glad to see many proposals reflecting the need to improve health equity and outreach to underserved populations, including people with disabilities.
(November 18, 2015) - Download [ WORD ] |
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Health Task Force
The Health, Rights and Technology Task Forces came together to develop comments on the Notice of Proposed Rulemaking implementing the nondiscrimination provisions in the Affordable Care Act.
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) Health, Rights, and Technology & Communications Task Forces, appreciate the opportunity to provide comments in response to U.S. Department of Health and Human Services (HHS), Office for Civil Rights, Notice of Proposed Rulemaking (NPRM) regarding Nondiscrimination in Health Programs or Activities.
(November 9, 2015) |
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Health Task Force
The CCD Health task force working with other national coalitions responded to concerns that the number of disability related questions might be reduced in the National Health Interview Survey. The letter provides a justification for continuing to include the broad range of questions
(November 5, 2015) - Download [ PDF ] |
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Health Task Force
CCD ACA one pager on open enrollment
If you're uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s exchange. During “open enrollment”, private health insurance options can be reviewed and coverage can be purchased. People with low and moderate incomes may be able to get financial help to pay for health insurance coverage.
(October 26, 2015) - Download [ PDF ] |
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Health Task Force
The CCD Health task force supports the nomination of Henry Claypool to the Medicaid and CHIP Payment and Access Commission
We are writing this letter on behalf of the Consortium for Citizens with Disabilities to support the nomination of Henry Claypool to serve as a Commissioner on MACPAC, as put forward by former MACPAC Commissioner Judith Moore.
(October 6, 2015) - Download [ PDF ] |
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Health Task Force
Medicaid Leave-Behind for 114th Congress
Medicaid services and supports are critical to the health, independence, and well-being of people with disabilities and chronic conditions. Medicaid provides comprehensive, affordable coverage to 68 million Americans, including 10 million Americans with disabilities.
(September 1, 2015) - Download [ PDF ] |
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Health Task Force
CCD Comments on NPRM
The Consortium for Citizens with Disabilities Health and Long Term Services and Supports Task Forces (hereafter referred to as CCD) appreciates the opportunity to provide comments on the proposed managed care rule. CCD is a coalition of national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 27, 2015) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force expresses concern about using Medicare resources to pay for the Trade Adjustment Assistance program
The Consortium for Citizens with Disabilities (CCD) Health Task Force is writing to ask you to oppose reducing the resources available to the Medicare program through the inclusion of Medicare sequestration cuts to offset the cost of the Trade Adjustment Assistance (TAA) program. The CCD Health Task force is not taking a position on trade policy.
(June 9, 2015) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force provides comments on the proposed regulation applying mental health parity requirements to Medicaid
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on the proposed rule applying the requirement of mental health parity to Medicaid managed care organizations, alternative benefit plans and Children’s Health Insurance plans.
(June 9, 2015) - Download [ PDF ] |
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Health Task Force
CCD urges Congress to support critical provisions of the Affordable Care Act
The undersigned organizations are writing as members of the Consortium for Citizens with Disabilities to express our strong support for maintaining the affordable access to comprehensive health insurance coverage created by the Affordable Care Act (ACA) for people with disabilities and chronic conditions.
(May 14, 2015) - Download [ PDF ] |
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Health Task Force
CCD Letter RE:(CMS–9938–P) Summary of Benefits and Coverage and Uniform Glossary
The Health Task Force submitted comments on the proposed rule Summary of Benefits and Coverage and Uniform Glossary issued by the Internal Revenue Service, the Employee Benefits Security Administration, and the Centers for Medicare and Medicaid Services.
(March 4, 2015) - Download [ PDF ] |
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Health Task Force
Health Task Force Annual Report for 2014
(January 12, 2015) - Download [ PDF ] |
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Health Task Force
Re: Comments on PPACA: Notice of Benefit and Payment Parameters for 2016. File code: HHS-9944-P
Thank you for the opportunity to comment on the proposed rule Notice of Benefit and Payment Parameters for 2016. The continued implementation and operation of Affordable Care Act (ACA) programs, including the Health Insurance Marketplaces, is crucially important to the millions of Americans with disabilities and chronic conditions.
(January 5, 2015) - Download [ PDF ] |
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Health Task Force
Time for a Health Insurance Check Up
The CCD Health Task Force has created this fact sheet to help spread the word about open enrollment for people who need health insurance and re-enrollment for people who already have health insurance through the marketplace. CCD encourages individuals and organizations to help spread the word to people who need health insurance and help us reach our goals of affordable quality health care for all.
(October 22, 2014) - Download [ PDF ] |
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Health Task Force
The CCD Health Task Force is supporting the nomination of Henry Claypool to serve as a Commissioner on the Medicaid and CHIP Payment and Access Commission (MACPAC)
We are writing this letter on behalf of the Consortium for Citizens with Disabilities Health Task Force to nominate Henry Claypool to serve as a Commissioner on the Medicaid and CHIP Payment and Access Commission (MACPAC) in response to the July 22, 2014 Federal Register Notice, 79FR42515, calling for MACPAC nominations.
(September 17, 2014) - Download [ PDF ] |
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Health Task Force
Reference Pricing Letter
We, the co-chairs of the Consortium for Citizens with Disabilities Health Task Force, appreciate the opportunity to comment on out-of-pocket protections and reference pricing, as requested in the FAQs About Affordable Care Act Implementation (Part XIX) issued on May 2 by the Departments of Labor, Health and Human Services, and Treasury.
(August 8, 2014) - Download [ PDF ] |
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Health Task Force
Re: Comments on the Contract Year 2015 Policy and Technical Changes to the Medicare Advantage and the Medicare Prescription Drug Benefit Programs Proposed Rule (CMS–4159–P)
The CCD Health Task Force wrote in strong opposition to the proposed changes in the Medicare Part D program that would have created barriers to access to critical medications needed by people with disabilities. CCD is pleased that CMS has indicated to Congress that it would not be moving forward with this proposal at this point in time.
(March 13, 2014) - Download [ PDF ] |
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Health Task Force
Letter to Issuers on Federally-facilitated and State Partnership Exchanges
The CCD Health Task force provided comments to HHS on the recent Letter to Issuers on Federally-Facilitated and State Partnership Exchanges. CCD recognized that the Letter provides additional consumer protections beyond the 2014 Letter but urged HHS to provide additional guidance on network adequacy, benefit design review, and meaningful access in order to ensure that the health plans offered in the health insurance marketplace will be effective for people with disabilities.
(March 7, 2014) - Download [ PDF ] |
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Health Task Force
Final CCD Letter on Medicare Reform with Sign-ons (D0518895)
As part of the SGR reform effort, Congress is now considering major changes to the Medicare program to offset the cost of the physician fee schedule fix and generally reform the Medicare program. On Wednesday, February 12, the CCD Health Task Force sent to the Hill this position statement detailing our perspective as Congress considers its Medicare reform options.
(February 12, 2014) - Download [ PDF ] |
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Health Task Force
Health Task Force Annual Report for 2013
(January 10, 2014) - Download [ PDF ] - Download [ WORD ] |
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Health Task Force
CCD urges Joint Committee to protect Medicaid and health programs
(November 3, 2011) - Download [ PDF ] |
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Health Task Force
The Health Task Force submitted comments to HHS on the risk adjustment and reinsurance regulations
(November 3, 2011) - Download [ PDF ] |
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Health Task Force
CCD raised concerns with the HHS NPRM on Medicaid eligibility changes under the Affordable Care Act (ACA)
(November 3, 2011) - Download [ PDF ] |
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Health Task Force
The Health Task Force provides comments on establishing the health insurance exchanges under the ACA
(November 3, 2011) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force provides comments to CMS on California State Plan Amendment
(August 25, 2011) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force comments on Medicare and Medicaid alignment initiative
(July 27, 2011) - Download [ PDF ] |
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Health Task Force
CCD comments on CMS proposed rate review rule
(July 26, 2011) - Download [ PDF ] |
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Health Task Force
CCD members oppose Medicaid cuts and spending caps
(June 15, 2011) - Download [ PDF ] |
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Health Task Force
CCD Members Ask Congress to Protect Medicaid Eligibility
(June 2, 2011) - Download [ PDF ] |
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Health Task Force
Request for Comments Regarding Exchange-Related Provisions in Title I of the Patient Protection and Affordable Care Act
(April 27, 2011) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force: CCD Opposes Medicaid Caps or Block Grant
(April 13, 2011) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Co-Chairs respond to AHRQ request for comment on core health quality measures for Medicaid eligible adults
(March 4, 2011) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Co-Chairs respond to AHRQ request for comment on core health quality measures for Medicaid eligible adults
(January 13, 2011) - Download [ PDF ] - Download [ WORD ] |
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Health Task Force
CCD written testimony to the IOM regarding their consensus study on developing criteria for the essential health benefits, as established by ACA
(January 12, 2011) - Download [ PDF ] |
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Health Task Force
The Disability Community Supports Critical Provisions in the Affordable Health Care for America Act (H.R. 3962)
(November 10, 2009) - Download [ PDF ] |
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Health Task Force
CCD Letter to the Honorable Edward M. Kennedy, Chairman, Health, Education, Labor and Pensions Committee, United States Senate regarding the Affordable Health Choices Act
(July 17, 2009) - Download [ PDF ] |
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Health Task Force
CCD Health Task Force Response to Senate Finance Committee Delivery Systems Proposal
(May 19, 2009) - Download [ PDF ] |
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Health Task Force
Principles for Health Care Reform from a Disability Perspective
(May 14, 2009) - Download [ PDF ] |
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Health Task Force
CCD Health and Long Term Services and Supports Task Forces' Response to Finance Committee Coverage Proposals
(May 14, 2009) - Download [ PDF ] |
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Health Task Force
Healthcare Reform Recommendation No. 1: Benefit Package
(May 14, 2009) - Download [ PDF ] |
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Health Task Force
Healthcare Reform Recommendation No. 2: Insurance Exchange
(May 14, 2009) - Download [ PDF ] |
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Health Task Force
Health Reform Recommendation No. 3: CCD Supports Comparative Effectiveness Research with Proper Protections to Ensure Continued Access to Devices and Services for People with Disabilities and Chronic Conditions
(May 14, 2009) - Download [ PDF ] |
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Health Task Force
Health Care Reform Recommendation No. 4: Extending Medigap to Medicare Beneficiaries with Disabilities of all Ages
(May 14, 2009) - Download [ PDF ] |
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Health Task Force
Health Task Force Annual Report
(January 2, 2009) - Download [ PDF ] - Download [ WORD ] |
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