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DEVELOPMENTAL DISABILITIES, AUTISM AND FAMILY SUPPORT
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Developmental Disabilities, Autism and Family Support Task Force
CCD Letter re Ban ESD
The undersigned members of the Consortium for Constituents with Disabilities (CCD) DD, Autism, and Family Support Task Force writes to urge you to include a ban on electroshock devices used as behavioral control on people with disabilities in the end of the year FY 2023 funding package. The House passed an electroshock device ban as part of the Food and Drug Administration (FDA) User Fee legislation and a similar ban was adopted by amendment during the Senate’s mark-up for the User Fee legislation.
(December 6, 2022) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Response from the CCD DD, Autism and Family Support Task Force to the request for comments on the 2022 National Strategy to Support Family Caregivers
These comments are submitted on behalf of the CCD DD, Autism and Family Support Task Force. The mission of the task force is to advocate for federal public policies that directly relate to individuals with developmental disabilities, autism spectrum disorders, family supports and the prevention of child abuse and neglect. These include, but are not limited to, the Developmental Disabilities Act, Autism CARES Act, Lifespan Respite Care Act, and National Child Abuse Prevention and Treatment Act.
(December 6, 2022) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Developmental Disability, Autism & Family Support Task Force 2021 Annual Report
(January 11, 2022) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Comments to IACC strategic plan
Research shows that early diagnosis of and interventions for autism are more likely to have major long-term positive effects on symptoms and later skills. We also have some data (but not enough) to show that children of color, girls, and non-English speakers are frequently not identified, under-identified or mis-identified. Given what we know about the importance of early identification, this inequity leads to poorer outcomes for these children.
(November 30, 2021) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD DD Autism FS TF FY22 Appropriations letter April 2021
On behalf of the Consortium for Citizens with Disabilities Developmental Disabilities, Autism and Family Supports Task Force (Task Force) and undersigned organizations, we write to urge adequate Fiscal Year 2022 funding for programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act), Assistive Technology Act, Autism CARES Act, the Lifespan Respite Care Act, and Kevin and Avonte’s Law, as well as the National Family Caregiver Support Program and Parent Information Centers.
(April 26, 2021) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Task Force on Developmental Disabilities, Autism and Family Supports Statement on Holding Elected Officials Accountable for the Use of Unacceptable and Hurtful Slurs.
We call on all elected officials and community leaders to take a close look at the language they use -- because words matter. We know that language has consequences. When people with intellectual and developmental disabilities are dehumanized through the use of slurs, the result is often exclusion from opportunities to learn, live, and work in the community. When public figures additionally use intellectual disability as a synonym for ignorance or incompetence or refer to people with intellectual disabilities as “stupid,” people with intellectual disabilities are at greater risk of discrimination in schools, in the workplace, in housing contexts, and elsewhere.
(February 4, 2021) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Autism, Developmental Disabilities and Family Support Anti-Racism Principles and Objectives
(February 4, 2021) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD DD and Financial Security Taskforce Co-chair Letter on Adult Dependents
Dear Majority Leader Schumer, Speaker Pelosi, Minority Leader McConnell, Minority Leader McCarthy, Senator Leahy, and Representative DeLauro: The Consortium for Citizens with Disabilities (CCD) Developmental Disabilities, Autism and Family Support Task Force and Financial Security and Poverty Task Force write to strongly urge you to ensure that adult dependents be included in economic impact payments in the next COVID-19 relief bill that passes Congress.
(January 31, 2021) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Annual Report - Developmental Disabilities, Autism and Family Support Task Force
(January 8, 2021) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
DD, Autism & Family Support TF Principles for 117th Congress
Message from the Board: The Consortium for Citizens with Disabilities (CCD) is pleased to present our policy recommendations to the 117th Congress outlining the needs of people with disabilities and their families. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(December 8, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
DD, Autism & Family Support TF Principles for Biden Administration 2020
Message from the Board: The Consortium for Citizens with Disabilities (CCD) is pleased to present our policy recommendations to the Biden Administration outlining the needs of people with disabilities and their families. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(December 8, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Thank You Letter to Chairman Chuck Grassley
The undersigned members of the Consortium for Citizens with Disabilities’ (CCD) Developmental Disabilities Autism and Family Support Task Force, Financial Security and Poverty Task Force, and allied organization write to thank you and the Senate Finance Committee for your work to include a provision in the “American Workers, Families, and Employers Assistance Act”1 that would ensure parents and caretakers of adult dependents receive $500 dependent rebates. People with disabilities and older adults have been devastated by the COVID-19 pandemic.
(August 7, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Statement for the Record on Tax Relief Hearing re Adult Dependents
Thank you for the opportunity to submit the following statement for the record of the Subcommittee’s June 18, 2020 hearing on “Tax Relief to Support Workers and Families During the COVID-19 Recession.” The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 2, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
FY 2021 Appropriations for Developmental Disabilities Autism and Family Support Programs
On behalf of the Consortium for Citizens with Disabilities Autism, Developmental Disabilities and Family Supports Task Force and undersigned organizational members of the task force, we write to urge adequate Fiscal Year 2021 funding for programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act), Assistive Technology Act, Autism CARES Act, the Lifespan Respite Care Act, and Kevin and Avonte’s Law, as well as the National Family Caregiver Support Program and Parent Information Centers.
(June 1, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Developmental Disabilities TF letter to Congressional Committees on COVID-19 Priorities for Package Four
Thank you for your leadership in addressing the unprecedented COVID-19 crisis for all Americans, including those who are at high risk for the virus – people with developmental disabilities. We greatly appreciated the 6.2% increase in the Medicaid federal medical assistance percentage (FMAP) in the Families First Coronavirus Response Act (FFCRA) and expect this amount to be increased in the next package.
(April 24, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Developmental Disabilities TF letter to Leadership on COVID-19 Priorities for Package Four
Thank you for your leadership in addressing the unprecedented COVID-19 crisis for all Americans, including those who are at high risk for the virus – people with developmental disabilities. We greatly appreciated the 6.2% increase in the Medicaid federal medical assistance percentage (FMAP) in the Families First Coronavirus Response Act (FFCRA) and expect this amount to be increased in the next package.
(April 24, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD DD Autism Family Support Cochairs Statement for the Record on the Healthy Families Act
The Co-chairs of the Developmental Disabilities, Autism and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) express our strong support for the Healthy Families Act (H.R. 1784). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 18, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
FMLA CCD Testimony for the record
The undersigned members of the Developmental Disabilities, Autism and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) express our strong support for the Family Medical Leave Modernization Act (H.R. 5456). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(February 7, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Letter to ACL re RAISE Act
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support appreciate the Administration for Community Living’s (ACL) request for information as part of the implementation of the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act of 2018. We are grateful for ACL’s request for input from family caregivers, organizations, and other individuals to help the Family Caregiving Advisory Council draft its initial report which will include recommendations to improve and better coordinate Federal programs and activities, including with state programs; and effectively deliver services based on performance, mission and purpose of the program while avoiding duplication/overlap.
(February 7, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
RAISE Act public comment request alert
The RAISE Family Caregivers Act of 2017 established an advisory council that reflects the diversity of the 43+ million caregivers in America. The Administration for Community Living wants to hear about your experiences, challenges, successes, and ideas to help the advisory council develop its national strategy on family caregiving.
(January 21, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Annual Report - Developmental Disabilities, Autism and Family Support Task Force
(January 9, 2020) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Sign on lettter re Autism Cares Reauthorization
We, the undersigned members of the Developmental Disabilities, Autism and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) are writing to express our support for the manager’s amendment to the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2019 (H.R. 1058) which advances priorities of the disability community and makes important technical changes.
(July 16, 2019) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD DD Task Force Lifespan Respite Letter of Support
Thank you for holding a hearing on "Reauthorizing Vital Health Programs for American Families" which includes the Lifespan Respite Care Reauthorization Act. We, the undersigned members of the Developmental Disabilities, Autism and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) are writing to express our strong support for the Lifespan Respite Care Reauthorization Act. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(June 24, 2019) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Support letter for DD Act and AT Act programs
On behalf of the Consortium for Citizens with Disabilities Autism, Developmental Disabilities and Family Supports Task Force and undersigned organizational members of the taskforce, we write to urge adequate Fiscal Year 2020 funding for programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act) and State Assistive Technology Programs.
(March 21, 2019) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
DD Autism and Family Support Task Force 2018 Report
(January 24, 2019) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
DD, Autism, & Family Support Task Force Principles for Autism CARES Act Reauthorization
The Autism CARES Act of 2014 (P.L. 113–157) amended the Public Health Service Act to reauthorize research, surveillance, and education activities related to autism spectrum disorders conducted by various agencies within the U.S. Department of Health and Human Services. The law authorized $1.3 billion in funding for fiscal years 2015-2019 and has a hard sunset of September 30, 2019.
(January 4, 2019) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CAPTA Letter to Senate
We, the undersigned members of the Developmental Disabilities, Autism and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) are writing to share our priorities for supporting children with disabilities and their families, and parents with disabilities, in the reauthorization of the Child Abuse Prevention and Treatment Act (CAPTA).
(December 20, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CAPTA Letter to House
We, the undersigned members of the Developmental Disabilities, Autism and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) are writing to share our priorities for supporting children with disabilities and their families, and parents with disabilities, in the reauthorization of the Child Abuse Prevention and Treatment Act (CAPTA).
(December 20, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
IACC Health Care Comments from CCD Task Force
Thank you for the opportunity to provide comments today. My name is Annie Acosta and I am with The Arc of the United States. Today I am here on behalf of the undersigned Co-chairs of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support to share some of our top priorities regarding the health care needs of people with autism spectrum disorder:
(September 27, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Taskforce DD Act programs letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support write to urge adequate funding for programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act).
(April 4, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
RAISE Act House Leadership Thank You Letter
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to thank you for your leadership on the RAISE Family Caregivers Act that was signed into law yesterday. The strong bipartisan support of this legislation is a heartening reminder that Members of Congress can work well together to address the urgent needs of the over 40 million caregivers in this country.
(January 23, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
RAISE Act Senate Leadership Thank You Letter
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to thank you for your leadership on the RAISE Family Caregivers Act that was signed into law yesterday. The strong bipartisan support of this legislation is a heartening reminder that Members of Congress can work well together to address the urgent needs of the over 40 million caregivers in this country.
(January 23, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Annual Report - Developmental Disabilities, Autism and Family Support Task Force
(January 22, 2018) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Letter to RAISE Family Caregivers Act House sponsors
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to express our support for your sponsorship of the bipartisan legislation RAISE Family Caregivers Act. We greatly appreciate your leadership in helping our nation’s millions of family caregivers
(September 22, 2017) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Letter to RAISE Family Caregivers Act Senate sponsors re substitute amendment
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to express our support of your amendment in the nature of a substitute to the RAISE Family Caregivers Act. We urge all Senators to support passage of this legislation that aims to help our nation’s millions of family caregivers.
(September 22, 2017) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Comments to ACL regarding proposed program consolidation
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to express deep concerns about the proposed budget restructuring, called the Partnerships for Innovation, Inclusion, and Independence (PIII), that will impact the State Councils on Developmental Disabilities and other key programs not legislatively intended to be consolidated.
(August 11, 2017) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Re: Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act, S. 1028
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to express our support for your bipartisan legislation, the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (S. 1028). We greatly appreciate your leadership in helping our nation’s millions of family caregivers.
(May 10, 2017) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD DD Autism Family Support Task Force Report 2016
(January 10, 2017) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Letter of Support for Kevin and Avonte’s Law
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support would like to express our support for Kevin and Avonte’s Law. We strongly support this bipartisan legislation that will help reduce the risk of injury and death to children with autism and other developmental disabilities.
(April 6, 2016) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD TF letter to OPM re ABA ASD coverage
On behalf of the Consortium for Citizens with Disabilities (CCD) Task Force on Health and Task Force on Developmental Disabilities, Autism, and Family Support, we write to thank the Office of Personnel Management (OPM) for directing Federal Employees Health Benefits (FEHB) Program carriers not to exclude coverage of applied behavior analysis (ABA) for the treatment of autism spectrum disorders in the 2017 plan year.
(March 29, 2016) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Senate OAA reauthorization letter from CCD TF members
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support, are writing to express our support of the House Amendment to Senate Bill 192, a bill to reauthorize the Older Americans Act (OAA).
(March 21, 2016) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD DD Autism Family Support Task Force Report 2015
(January 7, 2016) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Thank you letter to Dept of Labor re Siblings FMLA
The undersigned members of the Developmental Disabilities, Autism, and Family Support Task Force of the Consortium for Citizens with Disabilities (CCD) write to extend our sincere appreciation for the Department of Labor’s recent clarification of Family and Medical Leave Act (FMLA) eligibility for siblings.
(September 25, 2015) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Senate OAA reauthorization letter from CCD TF members
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support, are writing to express our support for S. 192, a bill to reauthorize the Older Americans Act (OAA).
(January 27, 2015) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
DD Autism and Family Support Task Force Annual Report for 2014
(January 12, 2015) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Letter to Senate re OAA reauthorization
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) Task Force on Developmental Disabilities, Autism, and Family Support, urge you to reauthorize the Older Americans Act (OAA), which expired in 2011, and ensure that two critical improvements make it into the final legislation.
(October 20, 2014) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Autism CARES statement
Legislation to reauthorize the Combating Autism Act is now advancing through both houses of Congress with bipartisan support and bicameral agreement on a new five-year federal funding response to coordinate research and training.
(June 11, 2014) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Letter for Support for Caring for Military Children with DD Act - House
We the undersigned members of the Consortium for Citizens with Disabilities (CCD) are writing in support of the Caring for Military Children with Developmental Disabilities Act of 2014 (H.R. 4630), legislation you recently introduced to improve access to behavioral health services, including applied behavior analysis (ABA), for TRICARE beneficiaries with autism and other developmental disabilities.
(May 27, 2014) |
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Developmental Disabilities, Autism and Family Support Task Force
CCD Letter for Support for Caring for Military Children with DD Act - Senate
We the undersigned members of the Consortium for Citizens with Disabilities (CCD) are writing in support of the Caring for Military Children with Developmental Disabilities Act of 2014 (S. 2333), legislation you recently introduced to improve access to behavioral health services, including applied behavior analysis (ABA), for TRICARE beneficiaries with autism and other developmental disabilities.
(May 27, 2014) |
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Developmental Disabilities, Autism and Family Support Task Force
CCD letter in support of the reauthorization of the Combating Autism Act
Since the enactment of the Combating Autism Act in 2006 and its reauthorization by the Combating Autism Reauthorization Act of 2011, federal agencies, in partnership with the private sector, have made significant strides in addressing one of our nation’s top health priorities.
(April 3, 2014) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Developmental Disabilities, Autism, & Family Support Task Force Annual Report for 2013
(January 15, 2014) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Press Release
Menendez announces Passage of Autism Bill Three Year Extension Heads Immediately to President’s Desk for Signature
(September 27, 2011) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Autism Task Force letter to Congress (April 2, 2011) urging quick action on the Combating Autism Act before it expires
(April 5, 2011) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Combating Autism Act of 2006 (text of the law)
(March 23, 2011) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Report to Congress on Activities Related to Autism Spectrum Disorders and Other Developmental Disabilities Under the Combating Autism Act of 2006 (FY 2006-FY 2009),
Prepared by the Office of Autism Research Coordination, NIH, HHS
(March 23, 2011) - Download [ PDF ] |
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Developmental Disabilities, Autism and Family Support Task Force
Training and Research for Autism Improvements Nationwide Act of 2010
(March 13, 2011) - Download [ PDF ] |
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