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The Consortium for Citizens with Disabilities
820 First Street, NE, Ste. 740
Washington, DC 20002
(202) 567-3516 phone
(202) 408-9520 fax
Email: Info@c-c-d.org

For information about CCD Membsership E-mail: membership@c-c-d.org
 
 
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TASK FORCES
LONG TERM SERVICES AND SUPPORTS
 
  2017
 
Long Term Services and Supports Task Force
CCD write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal.
(September 25,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Graham-Cassidy-Heller-Johnson (GCHJ) Letter to Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express strong opposition to the Graham-Cassidy-Heller-Johnson (GCHJ) proposal. As we have commented on multiple proposals considered by the Senate, we cannot overstate the danger facing the millions of adults and children with disabilities if the proposal’s Medicaid provisions are adopted.
(September 19,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Better Care Reconciliation Act (BCRA) Letter to the Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD) strongly oppose the revised Better Care Reconciliation Act (BCRA). While we have serious concerns about many provisions of the BCRA, including a new provision that would dramatically increase costs for people with preexisting conditions, we cannot overstate the danger facing the millions of adults and children with disabilities if the bill’s Medicaid proposals are adopted by the Senate.
(July 24,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Disability Integration Act (S. 910, H.R. 2472) Support Letter
The undersigned member organizations of the Consortium for Citizens (CCD) are writing to express our support for the Disability Integration Act (S. 910, H.R. 2472). This legislation, if passed, would ensure the rights of people with disabilities to live full and independent lives in their communities.
(July 18,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Statement: CCD opposed to the Senate’s Better Care Reconciliation Act
The Consortium for Citizens with Disabilities (CCD) is strongly opposed to the Senate’s Better Care Reconciliation Act. It is simply unconscionable to restructure and decimate Medicaid, which provides healthcare services and supports that maintain the health, function, independence, and well-being of 10 million enrollees with disabilities and their families. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(June 23,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Letter to the Senate
The undersigned members of the Consortium for Citizens with Disabilities (CCD), write in response to the House of Representative’s passage of the American Health Care Act (AHCA). We understand that the Senate will be drafting a separate bill, which may adopt parts of AHCA.
(May 19,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Protect the ACA’s Gains for People with Disabilities
Members of the Consortium for Citizens with Disabilities strongly oppose repealing key provisions of the Affordable Care Act (ACA) without simultaneously passing a replacement plan that maintains or improves existing coverage, access, and affordability. Unfortunately, the American Health Care Act (AHCA) passed by the House would abandon or undermine key enrollee protections, and if enacted would endanger millions of people with disabilities who have gained affordable coverage and access to needed services under the ACA.
(May 19,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Medicaid Per Capita Caps and Block Grants: Devastating for People with Disabilities
Capping the Medicaid program would be devastating to people with disabilities. Medicaid provides health care services and long-term services and supports that maintain the health, function, independence, and well-being of 10 million enrollees with disabilities and, often, their families. For many people with disabilities, being able to access timely needed care is a life or death matter. Block grants or per capita caps place arbitrary limits on federal support for Medicaid, limits unrelated to beneficiaries’ actual health care needs.
(May 19,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Statement of the Consortium for Citizens with Disabilities on Passage of the American Health Care Act (AHCA).
Washington DC, May 4, 2017 - The Consortium for Citizens with Disabilities (CCD), the country’s largest coalition of national disability groups, is gravely concerned about the House of Representative’s passage of the American health Care Act. The AHCA will harm tens of millions in the United States, but especially people with disabilities who will face coverage loss, higher costs, and fewer options.
(May 4,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD LTSS & Health Taskforces respond to amended American Health Care Act legislation
The Consortium for Citizens with Disabilities (CCD) is strongly opposed to the amended American Health Care Act. The amended American Health Care Act retains the original bill’s proposals to dramatically cut Medicaid services that are vital to people with disabilities and seniors through per capita caps, which CCD has opposed.
(April 28,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Action Alert! House Considering Vote on Harmful Health Care Bill: Call Congress Now
A new amendment to the AHCA is winning the support of the House Freedom Caucus making it more likely that a vote by the House of Representatives could happen as early as this weekend. Action is needed immediately to stop the American Health Care Act (AHCA) from being approved by the House of Representatives.
(April 27,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD responds to American Health Care Act Manager’s Amendment
The Consortium for Citizens with Disabilities remains extremely concerned about the American Health Care Act. The Medicaid per capita caps in the original bill put home and community-based services (HCBS) for people with disabilities at serious risk of major cuts or even elimination, as the CBO noted. The recent manager’s amendment does not resolve these concerns, and in fact, likely exacerbates them. 
(March 22,  2017)
Long Term Services and Supports Task Force
CCD responds to CBO score of the American Health Care Act
The Congressional Budget Office’s score confirms the Consortium for Citizens with Disabilities’ concern that the American Health Care Act would decimate the Medicaid program and endanger the lives and independence of the more than 10 million people with disabilities who rely on Medicaid. For most people with disabilities, Medicaid is the only source of long-term services and supports.
(March 16,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Medicaid Per Capita Caps and Block Grants: Devastating for People with Disabilities
Establishing funding caps for the Medicaid program would be devastating to people with disabilities. Medicaid provides health care services and long-term services and supports that maintain the health, function, independence, and well-being of 10 million enrollees living with disabilities and, often, their families.
(March 2,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
Protect the ACA’s Gains for People with Disabilities
Members of the Consortium for Citizens with Disabilities strongly oppose repealing key provisions of the Affordable Care Act (ACA) without simultaneously passing a replacement plan that maintains or improves existing coverage, access, and affordability. Losing or undermining key enrollee protections or disrupting care would endanger millions of people with disabilities who have gained coverage under the ACA.
(March 2,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD LTSS Task Force Annual Report 2016
(January 10,  2017) - Download [ PDF ]
Long Term Services and Supports Task Force
RFI HCBS model comments for CCD
The CCD LTSS Task Force Co-Chairs have submitted comments to the Centers for Medicare and Medicaid Services in response to the agency’s Request for Information on how to expand and improve Home and Community Based Services.
(January 9,  2017) - Download [ PDF ]
 
 
  2016
 
Long Term Services and Supports Task Force
CCD Letter Opposing Medicaid Block Grants, Caps or Cuts
The undersigned CCD organizations sent this letter to Capitol Hill, opposing block granting, setting of per capita caps or significant cuts to the Medicaid program.
(December 16,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
LTSS Task Force Comments on Application of HCBS Settings Regulation to PACE
CCD appreciates the opportunity to comment on the proposed PACE regulation. Our comments will be restricted to the application of the home and community-based services (HCBS) settings requirement. CCD strongly supports the application of the settings rule to PACE.
(October 17,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
Letter to Senate Finance supporting reauthorization of Money Follows the Person
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force are writing to express our support for reauthorizing the Money Follows the Person (MFP) program.
(October 6,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
Letter to House Energy & Commerce supporting reauthorization of Money Follows the Person
The undersigned member organizations of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports (LTSS) Task Force are writing to express our support for reauthorizing the Money Follows the Person (MFP) program.
(October 6,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Letter Urging Protection of Manual and Power Complex Rehab Technology Accessories
The undersigned member organizations urge passage of H.R. 3229/S. 2196 by year’s end to protect access to manual and power complex rehabilitation technology accessories for people with significant disabilities.
(August 18,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Statement on Recent Long-Term Services & Supports Financing Proposals
In early 2016, several bipartisan and nonpartisan organizations, including the Bipartisan Policy Center and the Long-Term Care Financing Collaborative, released reports on a path forward for future financing of our nation’s long-term care needs. The problem is clear: while our nation is aging and people are living longer with disabilities and chronic conditions, we lack a coherent plan on how to provide for their care and supports.
(May 16,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Statement of Support for the Disability Integration Act
The undersigned member organizations of the Consortium for Citizens (CCD) are writing to express our great appreciation to Senator Charles Schumer for introducing the Disability Integration Act (S. 2427), and bringing attention to the fact that states’ disability service systems continue to warehouse far too many people with disabilities in institutions.
(March 25,  2016) - Download [ PDF ]
Long Term Services and Supports Task Force
Medicare letter to Senate Finance
The CCD Health and Long Term Services and Supports Task Forces provided recommendations to the Senate Finance Committee regarding policy options to improve care for people with chronic health conditions in the Medicare program
(February 1,  2016)
Long Term Services and Supports Task Force
CCD LTSS Task Force Annual Report 2015
(January 7,  2016) - Download [ PDF ]
 
 
  2015
 
Long Term Services and Supports Task Force
Letter to Sen. Grassley on Transition to Independence
The undersigned members of the Consortium for Citizens with Disabilities (CCD) are writing to express our support for the intent of the Transition to Independence Act (S. 1604) and suggest some language and other feedback to further strengthen the goal of decreasing segregated employment and increasing competitive, integrated employment for people with disabilities.
(November 9,  2015) - Download [ PDF ]
Long Term Services and Supports Task Force
Medicaid Leave-Behind for 114th Congress
Medicaid services and supports are critical to the health, independence, and well-being of people with disabilities and chronic conditions. Medicaid provides comprehensive, affordable coverage to 68 million Americans, including 10 million Americans with disabilities.
(September 1,  2015) - Download [ PDF ]
Long Term Services and Supports Task Force
The Health and Long Term Supports and Services Task Forces of CCD provided comment on the Notice of Proposed Rulemaking from CMS on Medicaid managed care
The Consortium for Citizens with Disabilities Health and Long Term Services and Supports Task Forces (hereafter referred to as CCD) appreciates the opportunity to provide comments on the proposed managed care rule.
(July 27,  2015) - Download [ PDF ]
Long Term Services and Supports Task Force
LTSS Task Force Annual Report for 2014
(January 12,  2015) - Download [ PDF ]
 
 
  2014
 
Long Term Services and Supports Task Force
CCD Co-chairs letter on NQF nominations
The Consortium for Citizens with Disabilities (CCD) is a coalition of more than 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(December 23,  2014) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Complex Rehab Technology Act Support Letter
The undersigned member organizations of the Consortium for Citizens with Disabilities write in strong support of the Ensuring Access to Quality Complex Rehabilitation Technology Act (S. 948/H.R. 942).
(September 8,  2014) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD LTSS Letter to CMS on HCBS Regulation
We, the undersigned members of the Consortium for Citizens with Disabilities Long-Term Services and Supports Task Force, write regarding the implementation of the new home and community-based settings rule.
(September 8,  2014) - Download [ PDF ]
Long Term Services and Supports Task Force
Commerce, Justice, Science, and Related Agencies Letter
On behalf of the Consortium for Citizens with Disabilities (CCD) Long-Term Services and Supports Task Force, we write to express our deep concern about language that appears in the House Appropriations Committee’s Report on the Commerce, Justice, Science, and Related Agencies Appropriations Bill and that we urge you not to include in the Senate Committee Report or the Conference Report.
(June 20,  2014) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD LTSS TF comments on National Quality Forum (NQF) Measure Applications Partnership (MAP) interim report from the dual eligibles workgroup
The co-chairs of the Consortium for Citizens with Disabilities (CCD) task force on Long-Term Services and Supports (LTSS) are writing to submit comments on the National Quality Forum (NQF) Measure Applications Partnership (MAP): 2014 Interim Report from the Dual Eligible Beneficiaries Workgroup.
(February 18,  2014) - Download [ PDF ]
Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report for 2013
(January 15,  2014) - Download [ PDF ]
 
 
  2013
 
Long Term Services and Supports Task Force
Medicaid Letter to Budget Conference Committee Members
The CCD Health and LTSS Task Forces sent this letter to all members of the Budget Conference Committee, urging them to protect Medicaid as an entitlement for vulnerable Americans
(November 5,  2013) - Download [ PDF ]
Long Term Services and Supports Task Force
Response to Disability Competent Care Self-Assessment Tool
CCD LTSS response to a Disability Competent Care Self-Assessment Tool recently released by CMS including suggestions for improvement.
(August 28,  2013) - Download [ PDF ]
Long Term Services and Supports Task Force
LCAO-CCD Principles for Long-term Services and Supports
Principles developed jointly by the Leadership Council of Aging Organizations (LCAO) and the Consortium for Citizens with Disabilities (CCD) supporting a strong Medicaid program and additional resources and opportunities for home and community-based services and individual planning. These principles were submitted to the Congressionally established Long-term Care Commission.
(August 28,  2013) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD LTSS Comments on Companionship Exemption Regulation
CCD LTSS comments on DOL’s proposed changes to the companionship exemption including possible unintended consequences
(August 28,  2013) - Download [ PDF ]
Long Term Services and Supports Task Force
Medicaid Accountability and Care Act Letter (re: Medicaid Per Capita Caps)
The Health Task Force and the Long-Term Services and Supports Task Force of the Consortium for Citizens with Disabilities (CCD), a coalition of over 100 national disability organizations, are writing to express concerns with the Medicaid Accountability and Care Act (H.R. 1853).
(June 17,  2013) - Download [ PDF ]
Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report
(January 3,  2013) - Download [ PDF ] - Download [ WORD ]
 
 
  2012
 
Long Term Services and Supports Task Force
Long Term Services and Supports Task Force
(December 18,  2012) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Medicaid Managed Care Principles and Recommendations
This document details CCD’s over-arching principles and recommendations that must be central in the development and implementation of Medicaid managed care proposals and plans that include health care and long term services and supports for people with disabilities.
(May 11,  2012) - Download [ PDF ]
Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report
(January 18,  2012) - Download [ PDF ] - Download [ WORD ]
 
 
  2011
 
Long Term Services and Supports Task Force
Comments on CMS Proposed Rule for “Medicaid Program: Community First Choice Option”
(April 28,  2011) - Download [ PDF ]
 
 
  2010
 
Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report
(January 11,  2010) - Download [ PDF ] - Download [ WORD ]
 
 
  2008
 
Long Term Services and Supports Task Force
Long Term Services and Supports Task Force Annual Report
(December 22,  2008) - Download [ PDF ] - Download [ WORD ]
Long Term Services and Supports Task Force
Joint CCD and Leadership Council of Aging Organizations (LCAO) Principles on Long-Term Services and Supports Financing Reform
(October 8,  2008) - Download [ PDF ]
Long Term Services and Supports Task Force
Joint CCD and Leadership Council of Aging Organization (LCAO) letter to Senate Labor-HHS-Education Appropriations Committee urging increased funding for key family support programs, including the National Family Caregiver Support Program, Lifespan Respite Care Act, and family support within the Developmental Disability Act
(June 23,  2008) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Co-Chair letter to House Labor-HHS-Education Appropriations Committee urging increased funding for key family support programs, including the National Family Caregiver Support Program, Lifespan Respite Care Act, and family support within the Developmental Disability Act
(June 6,  2008) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Long Term Services and Supports Task Force Report 2007
(January 11,  2008) - Download [ PDF ]
 
 
  2007
 
Long Term Services and Supports Task Force
CCD Comments on Center for Medicare and Medicaid Services proposed rule on Medicaid coverage of rehabilitative services
(October 12,  2007) - Download [ PDF ]
Long Term Services and Supports Task Force
Letter of support from the co-chairs of the Consortium for Citizens with Disabilities Health and Long Term Services and Supports Task Forces for four specific disability-related provisions in the House version of the SCHIP reauthorization bill
(September 7,  2007) - Download [ PDF ]
 
 
  2005
 
Long Term Services and Supports Task Force
Reconciliation Letter regarding Medicaid by the Health and Long Term Services and Supports Task Force
(December 1,  2005) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD support letter for the Smith-Bingaman amendment during floor consideration of the FY 2006 Budget Resolution
(March 11,  2005) - Download [ PDF ]
Long Term Services and Supports Task Force
Smith Plans Floor Amendment to Defeat Medicaid Budget Cuts
Press Release from Sen Smith's office
(March 11,  2005) - Download [ PDF ]
Long Term Services and Supports Task Force
The Senate's Cuts in Medicaid and SCHIP Substantially Exceed Those the Administration Proposed
(March 11,  2005) - Download [ PDF ]
Long Term Services and Supports Task Force
The House Budget Committee's Proposed Medicaid and SCHIP Cuts Are Larger Than Those the Administration Proposed
(March 11,  2005) - Download [ PDF ]
Long Term Services and Supports Task Force
Speech by HHS Secretary Leavitt concerning Medicaid
(February 1,  2005) - Download [ PDF ]
Long Term Services and Supports Task Force
The Medicaid Program at a Glance
fact sheet by Kaiser Commission
(January 3,  2005) - Download [ PDF ]
 
 
  2004
 
Long Term Services and Supports Task Force
2004 Annual Report
(December 23,  2004) - Download [ PDF ] - Download [ WORD ]
Long Term Services and Supports Task Force
Citizens with Disabilities (CCD) strongly opposes any cuts to the Medicaid program
(May 3,  2004) - Download [ PDF ] - Download [ WORD ]
 
 
  2003
 
Long Term Services and Supports Task Force
Task Force Statement on Medicaid Block Grants
(October 2,  2003) - Download [ PDF ] - Download [ WORD ]
Long Term Services and Supports Task Force
CCD response to Bush Medicaid Proposal
(February 3,  2003) - Download [ PDF ] - Download [ WORD ]
Long Term Services and Supports Task Force
Why are State Medicaid Expenditures Rising?
by Leighton Ku and Matthew Broaddus
(January 13,  2003) - Download [ PDF ]