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Please visit our web site often to stay informed on national issues and events affecting the disability community.

The Consortium for Citizens with Disabilities
820 First Street, NE, Ste. 740
Washington, DC 20002
(202) 567-3516 phone
(202) 408-9520 fax
Email: Info@c-c-d.org

For information about CCD Membsership E-mail: membership@c-c-d.org
 
 
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TASK FORCES
LONG TERM SERVICES AND SUPPORTS
 

Mission

The Task Force on Long Term Services and Supports addresses the issues concerning non-acute health, community living, employment supports, recreational assistance, and other supports that enable individuals with disabilities of all ages to be independent and productive members of the community. We take an expansive view of long term supports, defining Personal Assistance as "One or more persons or devices that help an individual with a disability to perform everyday tasks that they would otherwise perform for themselves if they were not disabled."

Co-chairs

  • Alison Barkoff
    Center for Public Representation
    202-854-1270 phone 
    413-586-5711 fax 
    abarkoff@cpr-us.org

  • Dan Berland
    National Association of State Directors of DD Services(NASDDDS)
    703-683-4202 phone 
    703-684-1395 fax 
    dberland@nasddds.org

  • Nicole Jorwic
    The Arc of the United States
    202-783-2229 phone 
    202-534-3731 fax 
    jorwic@thearc.org

  • Sarah Meek
    American Network of Community Options and Resources (ANCOR)
    703-535-7850 x104 phone 
    703-535-7860 fax 
    smeek@ancor.org

  • Laura Weidner
    National Multiple Sclerosis Society (NMSS)
    202-408-1500 phone 
    202-408-0696 fax 
    laura.weidner@nmss.org

  ACTIVITIES
Long Term Services and Supports Task Force
CCD Letter to CMS on Electronic Visit Verification (EVV)
The Long-Term Services and Supports, Health and Rights Task Forces of the Consortium for Citizens (CCD) are writing to express our extreme concerns with the lack of timely guidance and official stakeholder input around the implementation of Electronic Visit Verification (EVV) for personal care and home health services. A significant delay in implementation is needed to ensure that the privacy and civil rights of consumers are protected; that the administrative and financial burdens on service providers is neither onerous nor duplicative; and that states are able to design and implement their EVV programs in a thoughtful, deliberative manner.
(May 17,  2018) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD SUD IMD Letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Health, Long-Term Services and Supports, and Rights Task Forces write in opposition to proposals that expands coverage of institutional services in Medicaid without addressing gaps in Medicaid community services. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 17,  2018) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Co-chair Letter on Institutions of Mental Disease (IMD) SUD Proposal
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Health, Long-Term Services and Supports, and Rights Task Forces write in opposition to proposals that expands coverage of institutional services in Medicaid without addressing gaps in Medicaid community services. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 24,  2018) - Download [ PDF ]
Long Term Services and Supports Task Force
Annual Report - Long Term Services and Supports Task Force
(January 22,  2018) - Download [ PDF ]
Long Term Services and Supports Task Force
Access to Manual Complex Rehabilitation Technology Accessories Support Letter
The undersigned member organizations of the Consortium for Citizens with Disabilities write to urge passage of H.R. 3730 in order to protect access to essential components of Complex Rehabilitation manual wheelchairs known as “accessories” for people with significant disabilities.
(January 12,  2018) - Download [ PDF ]
 
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