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Please visit our web site often to stay informed on national issues and events affecting the disability community.

The Consortium for Citizens with Disabilities
820 First Street, NE, Ste. 740
Washington, DC 20002
(202) 567-3516 phone
(202) 408-9520 fax
Email: Info@c-c-d.org

For information about CCD Membsership E-mail: membership@c-c-d.org
 
 
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TASK FORCES
LONG TERM SERVICES AND SUPPORTS
 

Mission

The Task Force on Long Term Services and Supports addresses the issues concerning non-acute health, community living, employment supports, recreational assistance, and other supports that enable individuals with disabilities of all ages to be independent and productive members of the community. We take an expansive view of long term supports, defining Personal Assistance as "One or more persons or devices that help an individual with a disability to perform everyday tasks that they would otherwise perform for themselves if they were not disabled."

Co-chairs

  • Alison Barkoff
    Center for Public Representation
    202-854-1270 phone 
    413-586-5711 fax 
    abarkoff@cpr-us.org

  • Julia Bascom
    Autistic Self Advocacy Network
    202-558-1270 phone 
    jbascom@autisticadvocacy.org

  • Dan Berland
    National Association of State Directors of DD Services(NASDDDS)
    703-683-4202 phone 
    703-684-1395 fax 
    dberland@nasddds.org

  • Nicole Jorwic
    The Arc of the United States
    202-783-2229 phone 
    202-534-3731 fax 
    jorwic@thearc.org

  • Sarah Meek
    American Network of Community Options and Resources (ANCOR)
    703-535-7850 x104 phone 
    703-535-7860 fax 
    smeek@ancor.org

  ACTIVITIES
Long Term Services and Supports Task Force
[House] CCD Emergency Mgmt and LTSS TF Support Letter for DRMA
The undersigned members of the Consortium for Citizens with Disabilities Emergency Management Task Force and Long Term Services and Supports Task Force are pleased to support the Disaster Relief Medicaid Act (DRMA). CCD is a coalition of national disability rights, advocacy, consumer, provider and self-advocate organizations representing this nation’s more than 61 million Americans with disabilities.
(May 31,  2019) - Download [ PDF ]
Long Term Services and Supports Task Force
[Senate] CCD Emergency Mgmt and LTSS TF Support Letter for DRMA
The undersigned members of the Consortium for Citizens with Disabilities Emergency Management Task Force and Long Term Services and Supports Task Force are pleased to support the Disaster Relief Medicaid Act (DRMA). CCD is a coalition of national disability rights, advocacy, consumer, provider and self-advocate organizations representing this nation’s more than 61 million Americans with disabilities.
(May 31,  2019) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD Disability Principles for LTSS in Universal Health Care
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. This document lays out principles regarding long term services and supports (LTSS) that the undersigned members of CCD believe must be incorporated into any universal or “For All” health care system in the United States.
(March 31,  2019) - Download [ PDF ]
Long Term Services and Supports Task Force
Comment to National Quality Forum
We are writing on behalf of the Long Term Services and Supports (LTSS) Task Force of the Consortium of Citizens with Disabilities (CCD). CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The LTSS Task Force focuses on ensuring that people with disabilities and aging adults have access to the LTSS, particularly Home and Community Based Services (HCBS), they need to live, work and participate in their communities.
(March 27,  2019) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD MFP House Letter of support
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force write to express our strong support for the EMPOWER Care Act (H.R. 1342) to reauthorize the Money Follows the Person (MFP) Medicaid demonstration program for five more years. Reauthorizing MFP for a significant period of time is the top priority of the disability and aging communities.
(March 18,  2019) - Download [ PDF ]
Long Term Services and Supports Task Force
CCD MFP Senate Letter of support
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Long-Term Services & Supports (LTSS) Task Force write to express our strong support for S. 548 to reauthorize the Money Follows the Person (MFP) Medicaid demonstration program for five more years. Reauthorizing MFP for a significant period of time is the top priority of the disability and aging communities.
(March 18,  2019) - Download [ PDF ]
Long Term Services and Supports Task Force
2018 LTSS TF Annual Report
(January 11,  2019) - Download [ PDF ]
 
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