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Please visit our web site often to stay informed on national issues and events affecting the disability community.

The Consortium for Citizens with Disabilities
1825 K Street, NW, Ste. 1200
Washington, DC 20006
(202) 783-2229 phone
(202) 534-3731 fax
Email: Info@c-c-d.org

For information about the Social Security Task Force Public Education and Outreach Campaign,
please go to :
disabilityandsocialsecurity.org
 
 
Header
 
TASK FORCES
HEALTH
 
  2016
 
Health Task Force
CCD Letter on the Affordable Care Act (ACA) to Senators
The undersigned organizations are writing as members of the Consortium for Citizens with Disabilities to express our strong opposition to repealing key provisions of the Affordable Care Act (ACA). This would be particularly harmful without simultaneous enactment of a replacement plan that maintains or improves existing coverage and access.
(December 12,  2016) - Download [ PDF ]
Health Task Force
CCD Fact Sheet: People with Disabilities Benefit from the Affordable Care Act
Determining whether health reform proposals can meet the needs of people with disabilities requires analyzing the proposals from a disability perspective.
(December 12,  2016) - Download [ PDF ]
Health Task Force
CCD health task force submitted comments on the redesign of the National Health Interview Survey urging them to maintain key disability related questions
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to continue to participate in the review of the proposed changes to the National Health Interview Survey (NHIS). As we have previously stated, the current set of disability questions in the NHIS is critically important to the disability community.
(November 7,  2016) - Download [ PDF ]
Health Task Force
The CCD health task force has developed a brief flyer for member to use regarding the open enrollment period for the health plans authorized by the Affordable Care Act.
If you're uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s exchange.
(October 25,  2016) - Download [ PDF ]
Health Task Force
The Health Task Force submitted comments on the 2018 Notice of Benefits and Payment Parameters for health insurance plans sold in the marketplaces.
We, the undersigned members of the Consortium for Citizens with Disabilities, thank you for the opportunity to comment on this important rule. The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(October 6,  2016) - Download [ PDF ]
Health Task Force
Support and Additional Proposals for the Medicare Affordability and Enrollment Act of 2016
The Co-chairs of the Consortium for Citizens with Disabilities (CCD) Health Task Force appreciate the opportunity to comment on the Senate Finance Committee’s draft Medicare Affordability and Enrollment Act of 2016, recently circulated legislation to make improvements to the Medicare benefit related primarily to affordability and enrollment.
(August 5,  2016) - Download [ PDF ]
Health Task Force
The CCD Health Task Force provided comments on the proposed redesign of the National Health Interview Survey.
The CCD Health Task Force appreciates the opportunity to provide comments on the proposed changes to the National Health Interview Survey (NHIS), and wishes to emphasize the importance of the NHIS’ current set of disability questions to the disability community.
(June 30,  2016) - Download [ PDF ]
Health Task Force
CCD Comments on MACRA NPRM
The CCD Health Task Force provided comments regarding accessibility and patient provided input as it was addressed in the Notice of Proposed Rulemaking regarding the Merit-based Incentive Payment System and Alternative Payment Model under the Physician Fee Schedule in the Medicare program.
(June 27,  2016) - Download [ PDF ]
Health Task Force
CCD TF letter to OPM re ABA ASD coverage
On behalf of the Consortium for Citizens with Disabilities (CCD) Task Force on Health and Task Force on Developmental Disabilities, Autism, and Family Support, we write to thank the Office of Personnel Management (OPM) for directing Federal Employees Health Benefits (FEHB) Program carriers not to exclude coverage of applied behavior analysis (ABA) for the treatment of autism spectrum disorders in the 2017 plan year.
(March 29,  2016) - Download [ PDF ]
Health Task Force
Medicare letter to Senate Finance
The CCD Health and Long Term Services and Supports Task Forces provided recommendations to the Senate Finance Committee regarding policy options to improve care for people with chronic health conditions in the Medicare program
(February 1,  2016) - Download [ PDF ]
Health Task Force
Comments on wellness plans & GINA
The undersigned members of the Consortium for Citizens with Disabilities (CCD) submit these comments in response to the EEOC’s proposed rule to modify its current rules implementing the Genetic Information Nondiscrimination Act (GINA) and authorize workplace wellness programs to impose large penalties on employees’ covered spouses who decline to disclose disabilityrelated information.
(January 28,  2016) - Download [ PDF ]
Health Task Force
The CCD Health Task Force submitted comments on the final rule for information relating to access to care in the Medicaid program
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on the final rule addressing access to covered Medicaid services.
(January 8,  2016) - Download [ PDF ]
Health Task Force
The CCD Health Task Force submitted comments on the final request for information relating to access to care in the Medicaid program
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on the request for information regarding what additional data sources and approaches could be used to determine whether access to care is sufficient.
(January 8,  2016) - Download [ PDF ]
Health Task Force
CCD Health Task Force Report 2015
(January 7,  2016) - Download [ PDF ]
 
 
  2015
 
Health Task Force
CCD Health Task Force provides comments on the HHS notice of benefit and payment parameters for Affordable Care Act plans in 2017
As the co-chairs of the Consortium for Citizens with Disabilities Health Task Force, we are writing to provide comments on CMS’s proposed Notice of Benefits and Payments Parameters for 2017.
(December 22,  2015) - Download [ PDF ]
Health Task Force
CCD Health Task Force Comments on MACRA RFI
Thank you for the opportunity to respond to this Request for Information regarding the Merit-based Incentive Program and Alternative Payment Model in the Medicare program. We, the co-chairs of the Consortium for Citizens with Disabilities Health task force, were glad to see many proposals reflecting the need to improve health equity and outreach to underserved populations, including people with disabilities.
(November 18,  2015) - Download [ WORD ]
Health Task Force
The Health, Rights and Technology Task Forces came together to develop comments on the Notice of Proposed Rulemaking implementing the nondiscrimination provisions in the Affordable Care Act.
We, the undersigned members of the Consortium for Citizens with Disabilities (CCD) Health, Rights, and Technology & Communications Task Forces, appreciate the opportunity to provide comments in response to U.S. Department of Health and Human Services (HHS), Office for Civil Rights, Notice of Proposed Rulemaking (NPRM) regarding Nondiscrimination in Health Programs or Activities.
(November 9,  2015)
Health Task Force

The CCD Health task force working with other national coalitions responded to concerns that the number of disability related questions might be reduced in the National Health Interview Survey. The letter provides a justification for continuing to include the broad range of questions
(November 5,  2015) - Download [ PDF ]
Health Task Force
CCD ACA one pager on open enrollment
If you're uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s exchange. During “open enrollment”, private health insurance options can be reviewed and coverage can be purchased. People with low and moderate incomes may be able to get financial help to pay for health insurance coverage.
(October 26,  2015) - Download [ PDF ]
Health Task Force
The CCD Health task force supports the nomination of Henry Claypool to the Medicaid and CHIP Payment and Access Commission
We are writing this letter on behalf of the Consortium for Citizens with Disabilities to support the nomination of Henry Claypool to serve as a Commissioner on MACPAC, as put forward by former MACPAC Commissioner Judith Moore.
(October 6,  2015) - Download [ PDF ]
Health Task Force
Medicaid Leave-Behind for 114th Congress
Medicaid services and supports are critical to the health, independence, and well-being of people with disabilities and chronic conditions. Medicaid provides comprehensive, affordable coverage to 68 million Americans, including 10 million Americans with disabilities.
(September 1,  2015) - Download [ PDF ]
Health Task Force
CCD Health Task Force expresses concern about using Medicare resources to pay for the Trade Adjustment Assistance program
The Consortium for Citizens with Disabilities (CCD) Health Task Force is writing to ask you to oppose reducing the resources available to the Medicare program through the inclusion of Medicare sequestration cuts to offset the cost of the Trade Adjustment Assistance (TAA) program. The CCD Health Task force is not taking a position on trade policy.
(June 9,  2015) - Download [ PDF ]
Health Task Force
CCD Health Task Force provides comments on the proposed regulation applying mental health parity requirements to Medicaid
The Consortium for Citizens with Disabilities (CCD) Health Task Force appreciates the opportunity to provide comments on the proposed rule applying the requirement of mental health parity to Medicaid managed care organizations, alternative benefit plans and Children’s Health Insurance plans.
(June 9,  2015) - Download [ PDF ]
Health Task Force
CCD urges Congress to support critical provisions of the Affordable Care Act
The undersigned organizations are writing as members of the Consortium for Citizens with Disabilities to express our strong support for maintaining the affordable access to comprehensive health insurance coverage created by the Affordable Care Act (ACA) for people with disabilities and chronic conditions.
(May 14,  2015) - Download [ PDF ]
Health Task Force
CCD Letter RE:(CMS–9938–P) Summary of Benefits and Coverage and Uniform Glossary
The Health Task Force submitted comments on the proposed rule Summary of Benefits and Coverage and Uniform Glossary issued by the Internal Revenue Service, the Employee Benefits Security Administration, and the Centers for Medicare and Medicaid Services.
(March 4,  2015) - Download [ PDF ]
Health Task Force
Health Task Force Annual Report for 2014
(January 12,  2015) - Download [ PDF ]
Health Task Force
Re: Comments on PPACA: Notice of Benefit and Payment Parameters for 2016. File code: HHS-9944-P
Thank you for the opportunity to comment on the proposed rule Notice of Benefit and Payment Parameters for 2016. The continued implementation and operation of Affordable Care Act (ACA) programs, including the Health Insurance Marketplaces, is crucially important to the millions of Americans with disabilities and chronic conditions.
(January 5,  2015) - Download [ PDF ]
 
 
  2014
 
Health Task Force
Time for a Health Insurance Check Up
The CCD Health Task Force has created this fact sheet to help spread the word about open enrollment for people who need health insurance and re-enrollment for people who already have health insurance through the marketplace. CCD encourages individuals and organizations to help spread the word to people who need health insurance and help us reach our goals of affordable quality health care for all.
(October 22,  2014) - Download [ PDF ]
Health Task Force
The CCD Health Task Force is supporting the nomination of Henry Claypool to serve as a Commissioner on the Medicaid and CHIP Payment and Access Commission (MACPAC)
We are writing this letter on behalf of the Consortium for Citizens with Disabilities Health Task Force to nominate Henry Claypool to serve as a Commissioner on the Medicaid and CHIP Payment and Access Commission (MACPAC) in response to the July 22, 2014 Federal Register Notice, 79FR42515, calling for MACPAC nominations.
(September 17,  2014) - Download [ PDF ]
Health Task Force
Reference Pricing Letter
We, the co-chairs of the Consortium for Citizens with Disabilities Health Task Force, appreciate the opportunity to comment on out-of-pocket protections and reference pricing, as requested in the FAQs About Affordable Care Act Implementation (Part XIX) issued on May 2 by the Departments of Labor, Health and Human Services, and Treasury.
(August 8,  2014) - Download [ PDF ]
Health Task Force
Re: Comments on the Contract Year 2015 Policy and Technical Changes to the Medicare Advantage and the Medicare Prescription Drug Benefit Programs Proposed Rule (CMS–4159–P)
The CCD Health Task Force wrote in strong opposition to the proposed changes in the Medicare Part D program that would have created barriers to access to critical medications needed by people with disabilities. CCD is pleased that CMS has indicated to Congress that it would not be moving forward with this proposal at this point in time.
(March 13,  2014) - Download [ PDF ]
Health Task Force
Letter to Issuers on Federally-facilitated and State Partnership Exchanges
The CCD Health Task force provided comments to HHS on the recent Letter to Issuers on Federally-Facilitated and State Partnership Exchanges. CCD recognized that the Letter provides additional consumer protections beyond the 2014 Letter but urged HHS to provide additional guidance on network adequacy, benefit design review, and meaningful access in order to ensure that the health plans offered in the health insurance marketplace will be effective for people with disabilities.
(March 7,  2014) - Download [ PDF ]
Health Task Force
Final CCD Letter on Medicare Reform with Sign-ons (D0518895)
As part of the SGR reform effort, Congress is now considering major changes to the Medicare program to offset the cost of the physician fee schedule fix and generally reform the Medicare program. On Wednesday, February 12, the CCD Health Task Force sent to the Hill this position statement detailing our perspective as Congress considers its Medicare reform options.
(February 12,  2014) - Download [ PDF ]
Health Task Force
Health Task Force Annual Report for 2013
(January 10,  2014) - Download [ PDF ] - Download [ WORD ]
 
 
  2013
 
Health Task Force
The CCD Health Task Force provided input to HHS on the nondiscrimination provisions in the Affordable Care Act
The Consortium for Citizens with Disabilities Health Task Force appreciates the opportunity to provide comments in response to U.S. Department of Health and Human Services Office for Civil Rights Request for Information Regarding Nondiscrimination in Certain Health Programs or Activities.
(October 15,  2013) - Download [ PDF ]
Health Task Force
CCD health task force urges the National Quality Forum to include qualified people with disabilities and disability expertise on their work groups and committees
(October 9,  2013) - Download [ PDF ]
Health Task Force
CCD Health Task Force recommends to improvements in mental health policy to the Senate Finance Committee
(October 9,  2013) - Download [ PDF ]
Health Task Force
Letter to Issuers on Federally-facilitated and State Partnership Exchanges
CCD appreciates the opportunity to provide comments on the Letter to Issuers on Federally-facilitated and State Partnership Exchanges. C
(April 3,  2013) - Download [ PDF ]
Health Task Force
CCD health and long term services and supports task forces provides comments on proposed Medicaid rules
(February 22,  2013) - Download [ PDF ]
Health Task Force
CCD Letter to President Obama re: Medicaid
(February 14,  2013) - Download [ PDF ]
Health Task Force
CCD submits comments on the essential health benefits proposed regulation implementing provisions of the ACA
(January 17,  2013) - Download [ PDF ]
Health Task Force
CCD comments on proposed rules implementing critical health insurance reforms established by the ACA
(January 17,  2013) - Download [ PDF ]
Health Task Force
Health Task Force Annual Report
(January 3,  2013) - Download [ PDF ] - Download [ WORD ]
 
 
  2012
 
Health Task Force
Health Task Force Annual Report
(December 18,  2012) - Download [ PDF ]
Health Task Force
CCD Medicaid Managed Care principles
(August 14,  2012) - Download [ PDF ]
Health Task Force
Essential Health Benefits and Actuarial Value Working Group Comments on Data Collection
(July 16,  2012) - Download [ PDF ]
Health Task Force
CCD Responds to General Guidance on Federally-facilitated Exchanges
(July 16,  2012) - Download [ PDF ]
Health Task Force
Press Release Healthcare Ruling a Victory For All Americans
(June 29,  2012) - Download [ PDF ]
Health Task Force
Final Medicaid Interim comments
(May 14,  2012) - Download [ PDF ]
Health Task Force
Final Exchange with sign on
(May 14,  2012) - Download [ PDF ]
Health Task Force
Health Task Force Annual Report
(January 18,  2012) - Download [ PDF ] - Download [ WORD ]
 
 
  2011
 
Health Task Force
CCD urges Joint Committee to protect Medicaid and health programs
(November 3,  2011) - Download [ PDF ]
Health Task Force
The Health Task Force submitted comments to HHS on the risk adjustment and reinsurance regulations
(November 3,  2011) - Download [ PDF ]
Health Task Force
CCD raised concerns with the HHS NPRM on Medicaid eligibility changes under the Affordable Care Act (ACA)
(November 3,  2011) - Download [ PDF ]
Health Task Force
The Health Task Force provides comments on establishing the health insurance exchanges under the ACA
(November 3,  2011) - Download [ PDF ]
Health Task Force
CCD Health Task Force provides comments to CMS on California State Plan Amendment
(August 25,  2011) - Download [ PDF ]
Health Task Force
CCD Health Task Force comments on Medicare and Medicaid alignment initiative
(July 27,  2011) - Download [ PDF ]
Health Task Force
CCD comments on CMS proposed rate review rule
(July 26,  2011) - Download [ PDF ]
Health Task Force
CCD members oppose Medicaid cuts and spending caps
(June 15,  2011) - Download [ PDF ]
Health Task Force
CCD Members Ask Congress to Protect Medicaid Eligibility
(June 2,  2011) - Download [ PDF ]
Health Task Force
Request for Comments Regarding Exchange-Related Provisions in Title I of the Patient Protection and Affordable Care Act
(April 27,  2011) - Download [ PDF ]
Health Task Force
CCD Health Task Force: CCD Opposes Medicaid Caps or Block Grant
(April 13,  2011) - Download [ PDF ]
Health Task Force
CCD Health Task Force Co-Chairs respond to AHRQ request for comment on core health quality measures for Medicaid eligible adults
(March 4,  2011) - Download [ PDF ]
Health Task Force
CCD Health Task Force Co-Chairs respond to AHRQ request for comment on core health quality measures for Medicaid eligible adults
(January 13,  2011) - Download [ PDF ] - Download [ WORD ]
Health Task Force
CCD written testimony to the IOM regarding their consensus study on developing criteria for the essential health benefits, as established by ACA
(January 12,  2011) - Download [ PDF ]
 
 
  2010
 
Health Task Force
CCD Health Task Force comments on the interim final rules that implement provisions of the Patient Protection and Affordable Care Act (P.L.111-148) regarding coverage of preventive services
(November 18,  2010) - Download [ PDF ]
Health Task Force
CCD Health and Long Term Services Task Forces comment on the proposed rule on the review and approval process for Section 1115 demonstration projects
(November 18,  2010) - Download [ PDF ]
Health Task Force
CCD comments regarding the Interim Final Rule and Proposed Rule relating to Status as a Grandfathered Health Plan under the Patient Protection and Affordable Care Act
(August 16,  2010) - Download [ PDF ]
Health Task Force
CCD comments on Interim Final Rules relating to Dependent Coverage of Children to Age 26 under the Patient Protection and Affordable Care Act
(August 6,  2010) - Download [ PDF ]
Health Task Force
Disability Community Supports Critical Provisions of Senate bill
(January 12,  2010) - Download [ PDF ] - Download [ WORD ]
Health Task Force
Health Task Force Annual Report
(January 12,  2010) - Download [ PDF ] - Download [ WORD ]
Health Task Force
Disability Community's Recommendations to House-Senate Conference on Health Reform
(January 12,  2010) - Download [ PDF ]
 
 
  2009
 
Health Task Force
The Disability Community Supports Critical Provisions in the Affordable Health Care for America Act (H.R. 3962)
(November 10,  2009) - Download [ PDF ]
Health Task Force
CCD Letter to the Honorable Edward M. Kennedy, Chairman, Health, Education, Labor and Pensions Committee, United States Senate regarding the Affordable Health Choices Act
(July 17,  2009) - Download [ PDF ]
Health Task Force
CCD Health Task Force Response to Senate Finance Committee Delivery Systems Proposal
(May 19,  2009) - Download [ PDF ]
Health Task Force
Principles for Health Care Reform from a Disability Perspective
(May 14,  2009) - Download [ PDF ]
Health Task Force
CCD Health and Long Term Services and Supports Task Forces' Response to Finance Committee Coverage Proposals
(May 14,  2009) - Download [ PDF ]
Health Task Force
Healthcare Reform Recommendation No. 1: Benefit Package
(May 14,  2009) - Download [ PDF ]
Health Task Force
Healthcare Reform Recommendation No. 2: Insurance Exchange
(May 14,  2009) - Download [ PDF ]
Health Task Force
Health Reform Recommendation No. 3: CCD Supports Comparative Effectiveness Research with Proper Protections to Ensure Continued Access to Devices and Services for People with Disabilities and Chronic Conditions
(May 14,  2009) - Download [ PDF ]
Health Task Force
Health Care Reform Recommendation No. 4: Extending Medigap to Medicare Beneficiaries with Disabilities of all Ages
(May 14,  2009) - Download [ PDF ]
Health Task Force
Health Task Force Annual Report
(January 2,  2009) - Download [ PDF ] - Download [ WORD ]
 
 
  2008
 
Health Task Force
Competitive Bidding of Durable Medical Equipment under the Medicare Fee-For-Service Program
(May 7,  2008) - Download [ PDF ]
Health Task Force
CCD letter: re Impact of DME Competitive Bidding on Medicare Beneficiaries with Disabilities and Chronic Conditions
(May 7,  2008) - Download [ PDF ]
Health Task Force
CCD letter re House Budget Resolution - Medicaid Regulations Moatoria Reserve Fund
(March 11,  2008) - Download [ PDF ]
Health Task Force
CCD Comments to Centers for Medicare & Medicaid Services Interim Final Rule on Case Management
(March 11,  2008) - Download [ PDF ]
Health Task Force
Health Task Force 2007 Annual Report
(January 11,  2008) - Download [ PDF ]
 
 
  2007
 
Health Task Force
CCD Comments on Center for Medicare and Medicaid Services proposed rule on Medicaid coverage of rehabilitative services
(October 12,  2007) - Download [ PDF ]
Health Task Force
Letter of support from the co-chairs of the Consortium for Citizens with Disabilities Health and Long Term Services and Supports Task Forces for four specific disability-related provisions in the House version of the SCHIP reauthorization bill
(September 7,  2007) - Download [ PDF ]
Health Task Force
In “Too Sick to Work, Too Soon for Medicare: The Human Cost of the Two-Year Medicare Waiting Period for Americans with Disabilities
21 people with disabilities share their experiences while waiting for Medicare after leaving work due to a variety of reasons including cancer, chronic cardiac conditions, a car accident and debilitating injuries.These real-life stories illustrate how people with disabilities waiting for Medicare struggle to pay for health care. Some pay premiums for COBRA coverage but soon find the premiums unaffordable on disability income. Others qualify for Medicaid coverage initially but lose eligibility when their disability income begins (five months after being deemed disabled by the Social Security Administration). Other people interviewed spend their savings to pay for private health insurance but quickly discover that the premiums are unaffordable or private insurers will not cover someone with a pre-existing condition.During the year-long interviewing process some of the “Too Sick to Work, Too Soon for Medicare” project participants finally get Medicare and express tremendous relief that they will at last have coverage and be able to see health care providers of their choice. Others never live to get their Medicare coverage.
(March 21,  2007) - Download [ PDF ]
Health Task Force
Letter re Medicaid Rehabilitative Services Option
(March 19,  2007) - Download [ PDF ]